My husbband had a brain stem stroke Jan 2011 with wallenburg, he is still having issues with balance and swallowing. Still has the feeding tube because he can't drink liquids, we're trying to get the dr to remove the tube and let him drink with thickner, the dr is very reluctant. He can eat as long as we puree his foods, he still cannot eat foods that have to be chewed. The balance biggest issue, still cannot walk due to the balance issues. Walks only with a walker. Any suggestions from anyone. I would take him anywhere if some medical facility can help. We're from WV and the folks here say no use taking him anywhere, we just have to be patient, which is very hard to sit back and watch him try to walk and miss so much of his life that he enjoys. I am just so afraid I am missing opportunities to help. Thanks for any help or advice anyone can give. JudyView Thread
If I can ask, did you have balance and swallowing issues? My husband is 13 months post stroke and still has no balance. He had speech therapy and PT for a year, vital stem for six months, cannot drink liquids or eat anything he has to chew. The therapist said he would most likely have the peg tube the rest of his life. I know everyone is different but wondered if there was anything special that your doctor did and how long before you regained your balance, etc.
To SueDurante - thank you so much for your reply, it gives me much encouragement. It is so good to talk to folks that have gone through the same experiences, others just don't unerstand. This past year has been very hard for me and my husband. They have just recently discontinued his PT, and will most likely discontinue the vital stem after the next swallow eval. However, we'll continue to work at home exercising and with the grace and mercies of God will see recovery. May God Bless You and your husband. Thanks again. JudyView Thread
chrisandclara - my husband had a wallenberg stroke on January 16, 2011. He was in ICU for 2 weeks on vent, peg tube, etc. He was then moved to inpatient rehab. He had a couple of set backs due to pneumonia, hospital germ. He was discharged in April with the peg tube and outpatient therapy. He is still participating in outpatient therapy 3 x a week. He has not regained his balance. He is walking very slowly with a walker. He is also taking speech therapy to help with the swallowing. He can eat pudding consistency foods. They are using the vital stem for the speech therapy. He complains a lot of tingling, pain on the left side of his body, and it has increased this past week. He is only taking a blood pressure meds, asprin and prevacid. He had the horrible hiccups while in ICU, they were terrible. My husband is 58 and was very active prior to the stroke. This has been the toughest year and we still have a long road. However, very thankful that he is where is he. He wasn't even able to sit up during the first month or so. He has come a long way, but has a long way to go. I wish you and your husband the best. I wish there was a support group that I could join, as sometimes it just helps to hear from others that are going or have been thru the same issues. Take care.View Thread
My husband (58 years old) had a brain stem stroke on 1/16/11. He was in ICU on a vent for 2 weeks, then transferred to inpatient rehab with a trach and PEG until April. He is home and now taking outpatient physical and speech therapy. He walks with a walker (slowly), he has not regained his balance, and still has the PEG tube. He is eating a little pudding consistency foods. He complains of numbness and tingling of the right side. Has dry eye. He suffers depression at times. The neuro doc told him that he would regain his balance but it would be the last to come. I only hope he is not just telling him this and giving us false hope. It is so hard to watch him suffer with no quality of life. He was so active and now unable to do anything that he previously enjoyed. I was just wondering if anyone could give me some hope on recovery. Thanks.View Thread
My husband had a stroke on 1/16/11 and was diagnosed with Wallenberg. He was in the ICU for 2 weeks on a vent. He was then moved to the Rehab floor with a trach and feeding tube. He had physical, occupation and speech therapy. He was released from the hospital after 4 months. He continue to go to outpatient rehab. He cannot walk without a walker, still has the feeding tube (but can eat pudding consistency food), right side numbness, dry eye, tingling and numbness and balance issues. He suffers with depression as he was a very active person, hunted, rode motorcycle and very active with our church. He cannot drive and needs assistance with most everything he does. The neuro doc says he will gain his balance, but will be the last to come. No meds, just asprin, blood pressure pill and an anti-depressant. Any sugguestions? It breaks my heart to see him so helpless. We live in a small town in WV.View Thread