It must be so hard to deal with migraines. The only thing I can relate to you is (and I think I mentioned previously) is when I had a God awful intense headache for 26 days after a chiropractic injury.
When I get up in the morning and it's usually pretty early. I check on Pete, get coffee and fool around with the clay. I just let my thoughts float until I start thinking about Pete and how he used to be. I pretty much start my day and end my day with tears.
I'm so glad the time has changed. I do not like Daylight Savings Time - it's just not natural. I hope you have some time today without a headache. Will be talking to you later.View Thread
Good Morning, I supposed if life wasn't so darned much fun I'd just quit. Have to have some kind of humor. I don't know where you live but I hope it's not the east coast. Talk about problems!
Pete is not the same man I married. His personality if fading away. He has never once in all the time we've been married or just together called me a "bitch" or told me to "shut up". His voice isn't even the same. He's also becoming increasing confused. I know better now that when he's trying to explain something to me I listen very carefully, I don't try to understand I just say "okay, I'll check on it" or whatever seems to go with what he is talking about. When I start thinking about everything I get angry, sad, depressed and frustrated. I used to have to take something to help me sleep. But, since this has all started I lay my head down at night and I am out like a light but sleeping as light as possible to hear the monitor. I was sleeping on the floor for several weeks but kept waking up with a headache. I do plan on moving back to Louisville, KY. I'll probably stay with my sister and her husband and menagerie of dogs and cats (their animals are their children). I have more of a support system there. Here, we don't know a soul. I didn't even get to form any friendships at work because people were constantly coming and going and the job did not allow for friendship. The only people we know right now are Hospice people. When Pete is asleep and when I'm not cleaning up I go back to my little "studio" and work (or play) with my polymer clay. It helped with while I worked at my insane job and now it's a little respite from all of this. Must go now and get some things done. Hope you have a good day - it's also been good to get to know you too!View Thread
I cannot imagine the constant migraines! I can say for certain that I understand what you're going through - actually the whole 9 yards. I had a spinal cord injury back in '96 - by a chiropractor. I had the most God awful splitting headaches for a month. Everything from my solar plexus to my head were damaged. It was a nightmare. I was on pain meds for 7 years. When my meds were changed I went into a coma for 2 weeks - I may have mentioned this before. Anyway, it was life changing. My husband and I have been through a lot. I have an excellent resume - have been in the work force for over 34 years. Downsized 2 x's. My husband has worked for proprietary schools, managed a UPS store & and at one point was a top salesman making good money. Circumstances have just kicked our butts. No retirement for either one of us due to circumstances. We don't go out to movies or restaurants. Mainly because Pete has done most of the cooking and we like independent and diff types of movies. So, when we say "dinner & a movie" - it's at home which is fine. I just hope so much that you can find some relief! It must be horrible. I'm sitting here wondering about our situation - I want so much to go back home. This could go on for a while. Well, must go take care of things this a.m. If it's possible, I hope you have a good day. Take care.View Thread
Good Morning, yep, I know I need to take some breaks. The only neighbor I have that I know to a degree keeps saying "call if you need anything". Well, I've called her twice (a week in between) and she doesn't call me back. In some cases like if I need to take some laundry to have done and it's just about 3 blocks down the street I just assure Pete I'll be right back so I take it and get back asap. Dropping the laundry off to have it done can get expensive. Last week the lady that does the laundry accidentally put bleach in with colored sheets I'd gotten for Pete's hospital bed so that bunch of laundry and 3 upcoming laundries will be free of charge. She offered me that or buy new sheets - I took the free laundry! When Pete naps I'm torn between cleaning or working with some clay in my little "studio". I usually opt for cleaning because I feel guilty if I just go "play" with some clay. I know, I shouldn't but I do. Also, Pete and I have always been "neat freaks" and we both kept our apt immaculate. Having a problem with that right now. Thanks for sending the good energy - heaven knows I need it. Hope you're feeling alright this weekend. Talk to you laterView Thread
Good Morning, I do get help from volunteers w/Hospice but it always seems to be difficult to get someone. I've been asking for volunteers for 2 hours two times a week. That's really not even enough time to do much of anything. I don't have any family here nor do I have any friends. Seems the older we get the harder it is to make friends. Since I'm also unemployed (as of Sept 30) and have to do at least 2 job searches a week to get unemployment. I was able to get my 401k from my employer but Unemployment is going to stop my unemployment pay because it will take the place of what I would have gotten in ui. I was planning on using it for his final arrangements - might have to ask family to help on that. Well, need to get some things done this a.m. Hope you have a good day.View Thread
Good Morning, I'm so sorry your headaches are so dibilitating. Nothing like headache pain. Wish it would just go away for you.
My sister was here all last week and is flying home today. She was a tremendous help. She cooked and fixed meals everyday. It was like a mini vacation for me. I really did appreciate it. Pete's family is spread out like mine also. He has one daughter who's trying to save up some vacation days to come down. We also discussing final arrangements. We have Hospice involved. They are truly a Godsend. All week long Pete & I have contact with them. It's hard by myself. Getting a work out though. Well, must go have breakfast with my sister. You take careView Thread
I hope you're not still suffering from that migraine. I had 2 friends that had them constantly. I used to get them years ago but when I went through menopause they stopped. I know, fortunately for me. You wonder why so much pain. Right now my husband is sleeping. For the most part he's just not the Pete I knew but from time to time that part of his personality will come through. He tries to explain to me about the "good brain" and the "tumor brain" and how he's working between them. Hope you're having a good weekend. Take care.View Thread
Hi Sara, The days tend to run into one another lately. Fortunately for me we have a couple of clocks that have not only the time but month, date, year and day of the week. Otherwise I'd really be confused. I'm seeing Pete decline little by little on a daily basis.
A few other people have brought up the legal aspect. It's something I will more than likely do.
Well, the day beckons. Hope your's is good. Take care.View Thread
Thank you so much for your caring Sara. It must have been so difficult for you too. I'm trying to get over being angry at the doctors here and focus on him. I try to keep things nice around him, fix what he likes. It did happen so fast and yes I think there would have been things that could have been done. No one was listening to me. I cry a lot. One of my younger sisters is on her way here tonight to help out. She flew from PA to Oklahoma City and will be driving from the airport there to Ponca City. I'm going to go lie down for a little while. Will be in touch.View Thread
Good to hear from you. I kept trying to access this but couldn't. My gosh, you situation doesn't sound any better than ours. We had to file bankruptcy about 10 years ago after I went into a coma without med insurance. I am so sorry for what's going on with you. I also turned 60 on the 7th. Pete had turned 60 in January this year. Well, what everyone thought was a stroke turned out to be a tumor. It was 8 centimeters in June and grew to the size of a baseball by September. Went through all kinds of bs with Dr's here as well as the only hospital er. Pete's neurosurgeon in Enid, OK could only remove a portion of the tumor to reduce brain swelling. He was declining so rapidly. His entire left side is paralyzed. He's confined to a hospital bed. Hospice is working with us at home. His Dr has given him 3 to 6 months to live. It's so hard to take. I keep a "stiff up lip" all day making good meals for him, putting in DVDs he likes, and making him laugh. I stop from time to time to try to get him to talk about his fears and/or if there is anything he would want to do re last wishes. Then I cry myself to sleep. For 18 years he has been my best friend, my teacher, my lover and soul mate. We could still (before this) sit up all night and talk about everything. The down side of this is that he canceled our life insurance. I plan on moving back to Louisville as soon as possible. Again, I feel so bad for what you're going through. I wish to goodness this country had something in place to help us all. Take care, hope you'll keep in touch.View Thread
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