I was also born without a thyroid gland. I wasn't diagnosed until 6 weeks old. I have never met anyone like it either, but there is one ancestor I have who we believe was like me. She was born around 1910 and died at age 16 when her organs failed. That was only because she was never diagnosed, became extremely retarded by age 3, and no one knew anything about it. Let me give you my insider advice from 18 years of experience.
Absolutely positively do not eat grapefruit, it will wipe out every synthetic hormone your medication gives you and whatever you have built up. I really mean it, don't eat it. It makes me feel sick just being in the same room. Also be careful with soy products, I find it's difficult to digest and makes me feel really tired. It's hard because nowadays with the health food movement everyone uses soy oils to cook. Just watch out for it because it's not good for thyroid problems.
I am really forgetful too, and forget a LOT if I've had conversations with people about certain things. So I end up re-telling stories often. My hair sheds, my nails are brittle, my eyebrows are thin hairs, with fatigue I also feel muscle tension and pain. My resting temperature is usually around 97 degrees, and I am extremely sensitive to temperature and humidity, with really terrible reactions to heat. Heat also exacerbates my fatigue. I have an increased need for sleep. They recommend 8 hours of sleep. Nine or ten hours of sleep are better for us.
Weight is going to be an issue, but it's just a matter of being really watchful about your general health, and finding a form of exercise that you can tolerate. I get really exhausted within two minutes of any cardio. Walking, recreational swimming, and calm yoga really help me a lot. The more you move, the better you will be able to maintain your weight without a thyroid. It's been working for me.
Let me know if you have any more questions. I hope I helped.View Thread