I wish I had read this first. I was diagnosed in July 2012 I had 4 months of chemo (Red Devil), lost all of my hair, felt like there are worse things than death. I finally had surgery to remove the tumor and one lymph node on December 11th. The good news is that I had less than one millimeter of cancer and nothing in my lymph node (my tumor was golf ball size and growing rapidly). Now all I can think of is that TNBC can re-occur. I just wish I had known that there were other ways to treat this. How do I get past the stress of the fear of it reoccurring? I'm still raw, can remember every horrible moment at this point. I'm sorry if I'm too vocal. I just believe in telling the truth.
The cancer in the liver has gotten worse after three rounds of Doxil and Carboplatin, combined with Xgeva and Neulasta. Now, nearly 80% of her liver is cancerous. Basically, the doctor said that that combination was a failure, in my mom's case (stage IV, grade 3, tnbc, metastasized to the liver, bones and lungs).
Question 1: What to do in the above situation?
In the last two days, she is now going to the toilet every 2 to 3 hours, although stool is regular/normal. Her pain level is going up so she's now on Dilaudid every 3 to 4 hours.
Question 2: Is it possible that the level of pain is the same but that the Dilaudid's effectiveness is decreasing?
Question 3: Is the combination of decreasing pain management with increased trips to the bathroom a cause for concern?
This is the first community I have found where there are members who opted not to take chemo. Chemo or no chemo is a personal choice. I had a double mastectomy 6 mths ago and I have been taking Meriva curcumin, exercising and making smoothies. Also, I am trying to eat a Mediterranean diet. My tumor was 1.5cm and no mets. It is still early, however, I will keep you posted. This is a scary and challenging journal; however, tneg is not a death sentence. Patricia Prijatel wrote a book, Surviving Triple Negative Breast Cancer. She highlights women who went the traditional and non-traditional treatment routes. Her blog "Positives About Negative" is a wonderful source of information.View Thread
I am one year post treatment after have two tumors in right breast that were triple negative. I have undergone chemotherapy and radiation. During this past year my liver enzymes of ALP and GGT have been both elevated and normal. I will be having a liver biopsy on Dec 20th and would like to know if anybody has experienced anything like this. Thanks for your commentsView Thread
Hi. My mom has tnbc. I have no medical background, so i may make mistakes in my choice of words. I'm also very long-winded so please bear with me:
A year ago, my mom (age 56 then) was diagnosed with tnbc, 9mm lump in left breast duct, stage 1, grade 3. Also, left breast lymph nodes checked at that time, came back negative for cancerous cells. The doctors did a 15mm (1.5cm) lumpectomy October 5, 2011. They did a biopsy on the outer edges of that too and did not find any cancerous cells. No idea if they did any more mammograms/chest x-ray/ultrasound/sonogram. We know for sure that no MRI/PET scan/CT was ever done.
They started her chemo a month later, on November 7, 2011. Six rounds of Taxotere + Cytoxan which lasted till February 20, 2012. In the meantime, shortness of breath was a problem since end of December, became acute by March. Doctors basically said they could not do anything to fix the "acute dyspnea". This became less severe over time, but remained for a few more months.
Radiation, scheduled to start after the chemo was done, was delayed due to this dyspnea. On April 20, 2012, started 30 rounds/doses of radiation targeted to the area around where the lump was.
Around middle of May, before the radiation was nearly completed, she had severe chest pains, went to ER, pleural fluid found, tapped 450ml fluid from around left lung, sent it for tests, did not find any cancer. At same time, ultrasound of leg showed blood clot, then heparin injections for 3 months. Liver enzymes were also found to be abnormal at that time but by 3rd week of June, enzyme levels came back to normal, liver function test came back normal, and soon, mom started looking and behaving and eating and living normally. We were all fully convinced that she was cancer free forever (LOL, on hindsight).
So, from mid-May after the radiation was done, for the next 5 months, mom had no further treatment or medicines of any kind besides the heparin. Mom had gone back to work (a part-time clerk in a hospital), looked and felt totally normal besides the occasional pain in the abdomen. Then, mom had a fall two days before a routine mammogram scheduled for Oct 13, 2012, and we requested an MRI rather than a mammogram. After pressuring the primary care doctor, an MRI was done, and lo and behold, "invasive ductal carcinoma of left breast with liver metastasis", confirmed as Stage IV, grade 3, two days later by what my mom calls a "PET scan CT".
More than 80% of the liver was now cancerous (so the oncologist said it was too late for a liver transplant or radiation), it had metastasized to most of her bones on the right side of her body including occipital bone in the back of the head (brain MRI showed no cancer in brain, only on bone), and a few spots in the lungs. Funny thing: a "bone scan" came back completely clear - i.e. no cancer in bones, but the PET scan said otherwise. Anywayz, we started chemo right away coz the oncologist said that her liver was very close to being jaundiced and she would not be alive for her daughter's (my sister's) wedding on Nov. 17, 2012 if we didn't start chemo.
The 1st round of this second chemo regimen (Doxil + Paraplatin) was given on Oct 25. 2nd round on Nov. 20 (delayed by a week coz of my sister's wedding). 3rd round is scheduled for Tuesday, Dec. 11, 2012, three weeks after which they might do a PET scan.
She was hospitalized for 2 weeks from Nov. 17 because of non-stop vomiting coffee ground - endoscopy showed an ulcer at the start of her stomach that was "apparently" causing her vomiting. The 2nd week of her hospital stay she was just throwing up white mucus, no more coffee ground after they started her on a new regimen of gastro-intestinal drugs. Been a week since she's back from the hospital. She's back to eating solid foods, vomiting has stopped.
This is all I know so far about my mom's condition. Suggestions? Advice?View Thread
Hi, I am new. I have TN breast cancer and have had a lumpectomy of the right breast. I had a X-ray before the sugery and a couple lung nodules showed up. At first they thought they were probably nothing but after doing a pet scan one did light up but not as bright as it could have. I am waiting to see if a doc at MD will biop it, two other docs have already pasted on it saying it is too deep in the chest wall. I am a stage 1 early stage 11 because of the size 2.1cm. I am 56 and pretty worried about the lung thing. I am waiting to start chemo, it has been 6 weeks since the surgery. Has anyone else had a similair experience? What are the chances that the lung nodule is cancer. Lymp nodes were clear, but I know cancer can travel thru your blood stream as well. Thanks for listening and I will be looking forward to your response. DebbieView Thread
Hello - This is my first post here. My mom has been diagnosed with recurrent, BC. Her first bout with BC was in 2004 (ER- PR- HER2+). She had a mastectomy (left side), chemotherapy and radiation. This time it is triple negative. It has been found under her left armpit with lymph node involvement, as well as lymph node involvement in the collarbone area, therefore it's being referred to as N3 disease. Biopsies were performed in the aforementioned areas to confirm. The PET scan also revealed a spot on the lung. The lung has not been biopsied as of yet. It appears to be Stage IV, but they cannot confirm with the lung biopsy. We are told that the cancer is at the "boundary" of what is "surgically resectable" so therefore, chemotherapy is the only recommended treatment. Does this mean that it's "inoperable"? Why wouldn't surgery be performed to take out the affected lymph nodes and tissue? One oncologist recommends a biopsy of the lung BEFORE chemo begins. The other oncologist suggests we start chemo and see how the lung responds. We are weighing the options, but not sure we understand all the factors. We also understand the urgency of getting the chemo started. My mom is 76, scared and confused. I'm trying to sort it out for her. Any input from this community would be so very appreciated. Should she wait to biopsy the lung? Would surgery be better? Is surgery completely out of the question and why? Again, thank you. View Thread
I was diagnosed with TN breast cancer this past summer I have had 2 rounds of cytoxan and taxotere and was supposed to have #3 today. Last round I had an allergic reaction to one of the nausea pre meds given before chemo, even though I had had the same thing the first round. This 3rd round I had an even worse allergic reaction to the taxotere. I have an underlying liver disease that I have had for a long time. Therefore I am not reacting "typically" as others would. I am worried that before I can start again, what I have already had in chemo will have lost its effectiveness. Can anyone advise or comment.View Thread
Hello. My mother was recently diagnosed with triple negative breast cancer stage 2 grade 3. The tumor is...
Posted by Anon_228193
Hello. My mother was recently diagnosed with triple negative breast cancer stage 2 grade 3. The tumor is extending to the chest wall but no node involvement. She's 63 no heart problems but she does have diabetes high blood pressure and high cholesterol. I've researched all I can about triple negative breast cancer but I have a couple of questions. Should she do a lumpectomy or a mastectomy considering her health already and considering the cancer is aggressive? I've read chemo is the best treatment for trip negative does it have to be through an IV or can she take chemo pills? Anyone with similar experiences?View Thread
I just was diagnosed with triple negative breast cancer. I start chemo next week and am waiting results to...
Posted by An_226820
I just was diagnosed with triple negative breast cancer. I start chemo next week and am waiting results to see if it spread. very scared about being sick with chemo. I bought lollipops and hard candyView Thread
I was recently diagnosed with Triple Negative . I had my 1st surgery , then had 6 rounds chemo when I found 2 more spots had surgery , was diagnosed with inflammatory cancer now I am having to go through with 6 more rounds of chemo and possibly radiation . I am only 43 , but does it ever get easier to deal with ?? What suggestions can anyone give me to help as how to handle this ???
On top of that I still have to worry about my little girl she just turned 9 yrs old .View Thread
Hi, I have grade 3 Stage 2 A Triple Negative Breast Cancer with 1 lymph node involved. I had a lumpectomy and...
Posted by An_226819
Hi, I have grade 3 Stage 2 A Triple Negative Breast Cancer with 1 lymph node involved. I had a lumpectomy and 16 lymph nodes removed in surgery 3 weeks ago. My oncologist want to give me 4 cycles of A/C and 4 cycles of Taxotrete. Then I must have 6 1/2 weeks of radiation. Does this sound like anyone else?View Thread
Hello all. I was dx TNBC in Oct. '09. Finished 4 AC, 12 Taxol, 36 radiations in mid Aug.. Had normal mammo in May of this year. All treatments done! Went on vacation ,Thank God ! Now follow up blood work Thurs."Thanks to all encouraging messages from many here on this site, which kept me going!"" You can get through this with the help of God and the loving prayers and help of all you brave ones out there." Please keep me in your prayers. I will pray for all of you! COURAGE,FAITH IN GOD, HOPE,PRAYER! HOPESHINEView Thread
Hi, I am Stage 2A and was recently diagnosed with being triple Negative. I had surgery in one of my breasts last week and am home right now. So glad to meet you guys here! Take care and talk to you very soon!View Thread
I am almost 3 years out from triple neg. breast cancer. I was told that since it was not estrogen positive...
Posted by An_226818
I am almost 3 years out from triple neg. breast cancer. I was told that since it was not estrogen positive there was not any medication that I could take to prevent its recurrence. I was told to go on with my life and not fret about it. Right!!!!! I was also told that it could come back anywhere in my body, not just the breasts. I went through the chemo and radiation very well. I am the opposite of most others inasmuch as I have to take ambien to sleep. I play tennis, golf, walk etc. most of the day and am tired but when my head hits the pillow, I cannot go to sleep. I am going to have my 4th ct scan in one year as I also have arthritis in my back so everytime I have a bone scan they want to check where hot spots appear. I now have small nodules in my left lung, which do not light up on a pet scan but show up on the CT.My doctor thinks that they are granulomas This is causing me anxiety as it could be metastasis of the breast cancer. What are your thoughts on thisView Thread
Welcome to this site. It's my first experience in starting an exchange so I guess we will all learn together. I am from West Tennessee...let us know where all of you are from. Tell us about your diagnosis and treatment. Love and Prayers, CarolView Thread
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.