I have T1 Diabetes and Hypothyroidism. I was diagnosed at the age of 4(1966). My glucose levels are crazy at times. This causes me to take more insulin. I was always told that the more insulin that you take, makes you gain weight. Talk to a Diabetes Educator to see if they can help.View Thread
Hi my name is Ashley I'm 21 and was diagnosed with t1 diabetes when I was 8 years old. I never really took care of myself until this year. I just didn't care and I couldn't tell you why. My doctors tried, my mom, who I feel so bad for tried everything to get me to do the right thing. Then eventually she just sat me down and said she'll always love me but she had to wash her hands in my situation. I was 19. This year I have had a really bad bout with anxiety and was thinking about death constantly. My diabetes doctor actually died of a massive heart attack which scared me so much. I started looking at the effects of diabetes on the body and realized it had been 13 years since I got diagnosed and even though I haven't had and major complications it wouldn't be long before I did. I also want to be a mom some day and realized it would never happen unless I got control of my illness. Basically it was me that was standing in my way and I needed to do the right thing. It also helped when I stopped caring about what everyone else thought about me.View Thread
I don't particularly like it, myself. You can pretty much eat anything you want with type 1. Within reason of course given your weight and activity level. Simply count the carbs, and take the required amount of insulin based on what you eat.
If you are looking for info about handling things, I would recommend the 2 books "Think Like a Pancreas" and "Using Insulin". They are "bibles" to insulin users.
Get a dexcom. It will alarm when your sugar goes off target. I used to have seizures @ night from low b.s. (even w. A pump). The dexcom.gave me piece of mind. I also found that eating a tbsp peanut butter, cheese or yogurt helped keep my sugar regulated at night. P.s. alcohol caused mine to drop quite a bit also. Good luckView Thread
Betty, i agree with Cora. Mimimed will send you samples of any infusion sets youd like. Explain your problem to them. Also, i suggest using skin tak to keep the tape/adhesive on your skin longer. Good luckView Thread
There are now a ton of sites and books to help you learn about diabetes. No, its not easy, but it can be contolled. There are so many advancements now with technology that make it easier. Good luckView Thread
Ive had my dexcom G4 for a year. It really helps me to know whats going on. Theres an arrow near the reading which indicates pretty accurately if the reading is inc.,dec, or. Staying the same. There is definately a margin for error which can be better controlled by calibrating the dexcom. The short of it. I thought id hate being liked with another device, but i think its helped me maintain good control of my health and i like being able to see whats going on.View Thread
Hi everyone I've been a diabetic for over 32 years, and yes I still suck at it. It beats me all the time, but every once in awhile I surprise diabetes! I lost the feeling of my sugars 4 years ago which for me has been the worse, because I can be anywhere, anyplace and it happens! No matter what I do to control it.
My life with diabetes has been a difficult one, heart attack, pacemaker on board, nueropathy of the lower extremities - severe!, and I can honestly say the worse of it in the bloody fibromyalgia mixed with the neurapathy - it knocks me out!
Anyways just wanted to let the young people know who have been diagnosed with diabetes - take care of yourself NOW - it hits you later with a punch you could never believe.
Yes go to parties and if you need a drink - have it! just don't overdue its not worth it.....View Thread
I'm at a lost right now in my life....Diabetes has taken so much of my time and patience, I feel broken! I...
Posted by An_255023
I'm at a lost right now in my life....Diabetes has taken so much of my time and patience, I feel broken! I have lost my sensation to tell how low my sugar is and I have tried so hard to get the sensation back, but to no avail. For months I tried to keep my sugar above 200 all the time and then I slowly started to gain control and kept it between 120 and 160, but before I knew it my sugar dropped down to 20 - still talking, acting normal, so I thought - but I became very belligerent, and defensive. Finally they gave me juice and food and I was normal yet again. What I have realized is that I'm in trouble, I have my safe guards in place, but who know if they will work? Besides no feeling, I have alot of trouble walking - you guessed it - severe neuropathy, and heart condition. Through all of this I kept moving on, not giving up! I hurt now all the time, and I keep trying but I don't have it in me to keep pushing - I need a break, something to go right with my body! I need everything to stay dormant, not get worse.View Thread
For some scholarly articles, you can simply google "metformin for type 1 diabetes". There is a mixed bag as they worry about dka and lactic acidosis (rare) in combination.
If you check out dLife, or Diabetes Daily you will find someone named Richard who has had type 1 for almost 70 years and is a type 1 on metformin. It's worked quite well for him helping him with control and weight loss.
Hi Amber. Sorry for the delay in responding. I just saw this. I did answer your post on the T2 board. If you are looking for a large group of T1s, try Diabetes Daily . There are a ton of us over there and are pretty supportive. Not only just a very active T1 forum, but a lot of stuff you can get from T2s as well.
There are nice people here too, but not so many of us and we don't always post that often.
I was diagnose t1 in 1972. For the last 12 years I have had every test imaginable done for the intestinal issues. It always feels like one good evacuation will help with everything, which of course, never happen. Tried reglan for almost two years and had some of the bad effects but didn't realize it at the time. I stopped taking it because it didn't work. I have no answers. Only questions. Hang in there just like I do. JimView Thread
It is possible that due to your age and hormones, you have developed insulin resistance. Some docs will prescribe metformin to help, or others simply say to take more insulin. At your age, my insulin requirements were all over the map. I had to take a lot more than I did before for the same amount of carb. Do you carb count? What is your insulin to carb ration as that may change too. Basically, as you mature, you are going to have to do a lot of insulin adjustments and at some parts in your life you may have to take a lot more than you did before. This doesn't mean you are getting "worse", it just means your requirements have changed.
I would strongly recommend the books "Think Like a Pancreas" and "Using Insulin". Both will give you a good grasp on dosing and hopefully you will be able to help yourself during this phase. Don't be surprised if you end up taking a lot less (as I did) when you hit about 20 or so.
All meters are pretty much the same. Each individual meter (even in a given product line) will be different from others. The trick is to find what your insurance covers and pick one who's features and size you like. Then take it to the lab (not the doc's office) and test when you have your blood taken and compare the results. This way you will find out how accurate your meter is. Do this a few times to see how consistent it is too.
Hey Laura, Diabulimia is new term for me but have been in same situation off and on for a long time.
I have type I and use an insulin pump. Been the best part of my treatment!! This pump helps me take care of me...don't feel like I'm alone in managing diabetes. The pump is programmed with a basal rate and carb to insulin ratio, plus much, much more. I count carbs...this is not difficult to do. The bolus wizard option then tells me what my insulin bolus will be. Do you use a pump?
I test 5-6 times daily. This again is not difficult to do. I'm investigating the possibility of getting the CGM (Continuous Glucose Monitor). I'm told by my doctor that this device alerts the wearer of impending highs or lows, allowing treatment for either result.
The down side of diabetes is the possibility of complications...anything from kidney damage/failure, neuropathy and so on. These complications can lead to more doctor visits. My vocation suffers, physical ability suffers, mental alertness suffers. I decided long time ago that no one can take care of me like I can. I'm in control, not the diabetes.
Just a few words of encouragement. You are certainly not alone in your daily struggle with diabetes. (1) Do you visit a doctor on a regular basis (every 3-4 months)? (2) Do you see a diabetes educator? (This person was extremely helpful when I began using the insulin pump.) If you are not satisfied with the advice you get from your doctor or educator...get one you can trust. Remember, do your homework, know questions to ask, and don't look for someone who will just pat you on the head and say "poor woman, you've really got a hard life." If you are not seeing an endocrinologist, this could be best choice, especially one who specializes in diabetes treatment. (3) Do you attend a support group for type I diabetics? (I ask this because many times a support group can focus on problems for type II's and not address the issues for type I's.) (4) Are you into helping others? This will relieve you of the continual focus on yourself and great possibility you can help someone else.
For me, made it my goal: I don't want diabetes to define who I am. I have it, but I try to live life to the norm. My feelings could consume me, but what's better...feelings alone or taking action on those feelings.
You mean aside from the fact that my high school friend has cancer? Sorry, I just found out - she was a smoker. It's not only a stupid habit, it's expensive.
I drank while in high school and university. You always need to make sure that you have some plain carbs (candy or whatever) because alcohol can cause your blood sugar to drop. Make sure that you test a lot. Drinking to excess is more of a problem than a beer or two. You can get into a heap load of trouble if people think you are drunk when in fact you are low.
There's nothing wrong with having a few drinks. Getting drunk is more dangerous for us, so be careful. Do your friends know how to take care of you in an emergency? Mine did. They knew to give me a regular coke if I was going low and we were drinking.
So have fun, but be careful. Eventually, I got tired of having blood sugars all over the place and not feeling well, so I became the designated driver.
I go through a lot of depression and wish i didnt. Im only 18 and do a lot of things i shouldnt seeing how i have diabetes and i was just wondering what kind of complications youve gone through?View Thread
I've had type1 for about 35 years.I began taking Crestor 2.5 to 3 years ago.This coincided with often inexplicable highs in the mornings.Now,looking back on my control before I began taking Crestor, morning highs occurred much less often then. I know with long term diabetes things change and it can become more difficult to manage highs and lows.But I'm rigorous in monitoring/injecting/meal logs ect. and I've been struggling for nearly three years to find solutions--without real success.It didn't make sense. I hadn't thought that Crestor might be a major contributor to the highs until a diabetic educator I'd sought out suggested it. Several studies suggest both Prevachol and Mevacor (low-intensity statins) demonstrated significantly lower risk for developing Type 2 when compared to Crestor,Lipitor & Zocor(high-intensity statins). Could there be implications for Type1's? I'll be talking with my doctor to see if switching to Prevachol might help with morning highs.View Thread
Even a speed walk may be too fast. Start very slow (I know it may be frustrating) and the work your way up.
As for the a1c, congrats on bringing it down, but you know there is room for improvement. I would suggest the book "Using Insulin" or "Think Like a Pancreas". Both will give you excellent suggestions on how to get a good handle on things.
Yup, makes perfect sense. Unfortunately, unless you want to get into a totally regular routine (which sounds like it would be hard for you) you aren't going to be able to do much. I hate to tell you this, but the sliding scale is getting obsolete because it doesn't work very well. That is part of why you are running high. Counting carbs is the only reliable way to figure out your dosing. Many things have their carb count written on them (when you make your own food), Calorie King is an excellent source for both regular, and take out/restaurant food, and guesstimating works well too. If you go to the same place a few times, you can work out what insulin you need for any given meal. You will need to test a lot too though
You don't need to eat at regular times, not with modern insulins. Are you on a rapid acting and something like lantus or levemir?
I would check out your library and see if you can get a copy of the book I already mentioned.
My name is Jessica Smith and I am a former JDRF employee, from the Northern California Inland Chapter, as well as a T1D myself. I am currently a graduate student at DePaul University's School of Public Service finishing my Master in Nonprofit Management degree. For my thesis project, I am examining the support network of teenagers living with type 1 diabetes (T1D) and the effect this support has on their health management.
This survey is intended for adults, 18 years and older, who have been living with T1D since childhood; you will be asked to reflect back on the support you received, and how you managed your diabetes during your teenage years, ages 12-17.
In this study, you will be asked to complete an electronic survey. In order to ensure that all information will remain confidential, please do not include your name. Your participation in this study is completely voluntary and you are free to withdraw your participation at any time. If you choose to participate in this project, please answer all questions as honestly as possible. The following questionnaire should take no more than 10minutes to complete. There is no compensation for responding, nor is there any known risk.
Thank you for taking the time to assist me in my educational endeavors. The data collected will provide useful information regarding teenagers living with T1D. Completion of the survey will indicate your willingness to participate in this study. If you require additional information or have questions, please contact me at the information listed below.
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