Hi there and sorry it took me so long to answer you. I don't pop in here that often any more. Yup! T1 can be just sooooo much work. And I've also found, over the years, that you also end up getting abuse because once you are an adult, people think you are a T2 and wonder what you "did" to get it. Sigh.
While the T2 community here is great, Diabetes Daily has a huge number of type 1s and you can get some help. Very supportive. If I were you, I would also post here at WebMd on the "regular" diabetes board . There are a number of insulin users who can also help.
In the meantime, is there anything in particular I can help with or are you just feeling generally bad and not knowing where to start?
Hi there. A couple of things. First of all, are you following an ADA type diet? Very carb heavy? To my mind that is kind of "old school" dating back to the days or R and N where you had to eat lots of carbs to feed the insulin.
I gained a lot of weight after my kidney transplant and took it off by eating moderate carb (100 - 120g per day), gradually tweaking my insulin downwards with the lower food, and mild exercise.
Also, just in general and non-d related, don't set numerical goals. Find a weight that is stable for you and you physically feel well. As I aged, my "good" weight changed and weights in your 20s are not necessarily appropriate for the rest of your life.
First what type of insulins are you on? Lantus/levemir can burn as it has a different ph. Also, is your insulin cold? If you inject directly out of the fridge it can burn too. A bottle is good for about a month once opened, whether or not it is refrigerated. So I always left my in a drawer in the kitchen.
I don't particularly like it, myself. You can pretty much eat anything you want with type 1. Within reason of course given your weight and activity level. Simply count the carbs, and take the required amount of insulin based on what you eat.
If you are looking for info about handling things, I would recommend the 2 books "Think Like a Pancreas" and "Using Insulin". They are "bibles" to insulin users.
I have seen more and more stuff about diabetics being able to lose weight better by doing a higher fat, lower carb diet and maintaining good control. I was never extreme - I did about 100 g of carb per day and didn't concern myself with fat. I had good chl numbers and everything seemed to be ok. I would look into some lchf (low carb, high fat) info but find what works for y ou best. I have read Dr. Bernstein's diabetes solution but could never be that radical. But it is a good starting place. \
When I gained a lot of weight after my kidney transplant (due to eating indulgences) I did manage to take wieght off by cutting carbs.
For some scholarly articles, you can simply google "metformin for type 1 diabetes". There is a mixed bag as they worry about dka and lactic acidosis (rare) in combination.
If you check out dLife, or Diabetes Daily you will find someone named Richard who has had type 1 for almost 70 years and is a type 1 on metformin. It's worked quite well for him helping him with control and weight loss.
Hi Frazzled/Danielle. I did have to lose a lot of weight at one point, but was not as physically active as you and also found that simply by limiting my eating I lost some. My issues were different than yours though.
If you don't mind my asking, how much insulin are you taking? There is something called "double diabetes". It is a T1, who also has insulin resistence which is characteristic of T2. I know of a few type 1s who were able to take less insulin and lose weight by being given metformin. Do you see an endo? Maybe you could discuss this. Part of your weight issues might be the insulin resistance and it becomes a vicious circle - each causing the other.
Hi Amber. Sorry for the delay in responding. I just saw this. I did answer your post on the T2 board. If you are looking for a large group of T1s, try Diabetes Daily . There are a ton of us over there and are pretty supportive. Not only just a very active T1 forum, but a lot of stuff you can get from T2s as well.
There are nice people here too, but not so many of us and we don't always post that often.
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