Wow. What an endo - and I don't mean that in a good way. A GAD after over 40 years of T!? WTF????
Anyway, worry for the rant. I've found the best way to screen docs (if you can choose one) is to check out RateMDs. There are often stupid people posting reviews, but if you can read between the lines, you'll find a good one.
I spend a fair amount of time on WebMD, but if you are looking for a large community of type 1s, go to Diabetes Daily . Quite a few pumpers and an awful lot of T1s. Very long term T1s.
Hi Deb. In the meantime, yoiu will have to go back to MDI (multiple daily injexctions). So yes, your lantus as well as individual injections of humalog or whatever fast acting you use in your pump.
Here in Ontario, you need an rx for both, but can still buy R and N over the counter. Not good control, but will do you in a pinch. And many pharmacies will sell you a few packets of syringes without a script too, so you won't need to be afraid of going into DKA until then.
Sorry for getting back to you so late. Best of luck and keep us posted.
Hi there and sorry it took me so long to answer you. I don't pop in here that often any more. Yup! T1 can be just sooooo much work. And I've also found, over the years, that you also end up getting abuse because once you are an adult, people think you are a T2 and wonder what you "did" to get it. Sigh.
While the T2 community here is great, Diabetes Daily has a huge number of type 1s and you can get some help. Very supportive. If I were you, I would also post here at WebMd on the "regular" diabetes board . There are a number of insulin users who can also help.
In the meantime, is there anything in particular I can help with or are you just feeling generally bad and not knowing where to start?
Hi there. A couple of things. First of all, are you following an ADA type diet? Very carb heavy? To my mind that is kind of "old school" dating back to the days or R and N where you had to eat lots of carbs to feed the insulin.
I gained a lot of weight after my kidney transplant and took it off by eating moderate carb (100 - 120g per day), gradually tweaking my insulin downwards with the lower food, and mild exercise.
Also, just in general and non-d related, don't set numerical goals. Find a weight that is stable for you and you physically feel well. As I aged, my "good" weight changed and weights in your 20s are not necessarily appropriate for the rest of your life.
First what type of insulins are you on? Lantus/levemir can burn as it has a different ph. Also, is your insulin cold? If you inject directly out of the fridge it can burn too. A bottle is good for about a month once opened, whether or not it is refrigerated. So I always left my in a drawer in the kitchen.
I don't particularly like it, myself. You can pretty much eat anything you want with type 1. Within reason of course given your weight and activity level. Simply count the carbs, and take the required amount of insulin based on what you eat.
If you are looking for info about handling things, I would recommend the 2 books "Think Like a Pancreas" and "Using Insulin". They are "bibles" to insulin users.
I have seen more and more stuff about diabetics being able to lose weight better by doing a higher fat, lower carb diet and maintaining good control. I was never extreme - I did about 100 g of carb per day and didn't concern myself with fat. I had good chl numbers and everything seemed to be ok. I would look into some lchf (low carb, high fat) info but find what works for y ou best. I have read Dr. Bernstein's diabetes solution but could never be that radical. But it is a good starting place. \
When I gained a lot of weight after my kidney transplant (due to eating indulgences) I did manage to take wieght off by cutting carbs.
For some scholarly articles, you can simply google "metformin for type 1 diabetes". There is a mixed bag as they worry about dka and lactic acidosis (rare) in combination.
If you check out dLife, or Diabetes Daily you will find someone named Richard who has had type 1 for almost 70 years and is a type 1 on metformin. It's worked quite well for him helping him with control and weight loss.
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