I imagine that you are feeling somewhat like a broken record at this point, so before you stop responding to this thread altogether, I would like to ask for one more suggestion. In your opinion, where is the best Urology department in the United States located, and how could I manage to get an appointment?
It's been over a year now, and at this point, it's obvious that this isn't going away. From what I have read, this is not an ordinary problem. Doctors with experience in treating the extraordinary would be preferable. If you know of any, please let me know, I can't live like this anymore.View Thread
Hey vik, thanks for your words man, I needed that. Sorry to get all negative, but this is really eating me up. I try and push it out of my mind as much as possible and stay positive, but it is always there, and constantly chipping away at my optimism. I used to find it somewhat comforting knowing that I wasn't the only one dealing with this; I wasn't alone. Now it makes me feel absolutely terrible that someone else is feeling this way.
It has been months of no improvement. I'm sad to say that I have been whacking it, mainly out of spite, which is probably part of my problem. I'm so sick of this sh!t, I just want to be normal again. Sex is completely out of the question. I put myself in the friend zone now. I'm very self conscious about the appearance, plus it would hurt. I won't go through the embarrassment of explaining that.
But thank you for your optimism in times when mine is on empty. You've been dealing with this longer than I have, and it has been as bad or worse for you. I'll try and keep my chin up, and hope that one day this will go away. Either time is going to fix it, or advancements in medicine will. I'll hang in there until that day; you do the same my friend.View Thread
Yeah, I'm a pretty heavy caffeine drinker, and I have a lot of nicotine running through my system at all times. Both apparently reduce blood flow to your genitals.
It's been a while since I've posted, so I suppose I'll give a little update. There's not really much to update on. It's going to be a year here in a few weeks. It's not getting any better, or any worse. It's still messed up, and I doubt anything is going to change. That's about it, cheerio.View Thread
Yeah you're probably right. It was slightly swollen at first, the skin was kind of puffy and red. Then it gradually got darker in color, and I could see the little veins. I can only see them if I have an erection, or if I stretch the skin. Otherwise it is just red. It has looked the same for months now. Still just half of my penis on the topside, and everything else around it is normal looking.View Thread
Dang man, that is a complicated and unfortunate situation you have. It sounds like all your problems are interconnected. I'm no doctor, but maybe it's just some kind of blockage or a blood clot? Does the lymphangitis and thrombosed vein meet up in the extremely tender spot? If you did have a blood clot, this troublesome bastard of a spot could be the location.
Also, you said that skin on your penis was peeling off? I wouldn't imagine that this would happen from an injury alone. Maybe it's some kind of infection or rash? I don't know. Just trying to throw out some different ideas.
I've also had pulsing. Anatomically speaking, I don't know what part of my penis it was coming from. It was coming from the chord I mentioned a few posts back. It's to the right of my dorsal vein, and I'm pretty sure it has always been there. It wasn't painful or anything, so it's not a problem.
I can definitely relate to how you felt when you first discovered this lovely treat. Looking back, my penis was extremely painful, I have come a long way since then. It was constantly burning and aching, and it felt like I was pissing razor blades. I could barely touch my penis and just having an erection gave me this awful tearing feeling.
I completely share your frustration man, I could never imagine that this would happen to me. Next time I go to the doctor, I will definitely be more persistent about getting a steroid cream. It's going to be a while though, I'm broke as a joke. What's the name of the steroid cream that you are using?View Thread
I thought that most of your troubles were coming from the sclerosing lymphangitis. If that's the case, then we have almost the exact same problem. Although, mine is visible and I still can't get the doctors to acknowledge it. Apparently the Urologists here can't see or hear. And I live in the states, so be very thorough in your search for a good doctor if you come here.
So you have one painful spot? How big is this spot? My spot is only on the topside, and it is like half of my penis. The skin is obviously damaged because it's all red and veiny. There's literally a cutoff point from injured to uninjured on my penis, it's like a border. I'm thinking that I tore the fascia in the middle, and from there down was stretched. I believe the middle was already a weak spot, looking back to very minor injuries from vigorous sex.
Anyways, I'm in the same boat as you. Just hoping for things to get better and not doing anything about it. It seems like there's not really anything to do. Doctors don't listen, or can't help; supplements and creams only slightly help if at all. Honestly, I think that most of the benefit from taking or using anything comes from the placebo effect.
Realistically, this is either going to take a very long time to heal, and the body is going to repair itself eventually. Or, surgical intervention is going to be required. Unless a bunch of doctors are held up in a bunker somewhere mixing up a miracle cure for penis injuries, I think that those are our only options.
Unrealistically, you could delve deep into the mind through meditation or some other method, and manage to heal yourself. Highly unlikely, but when everything else fails, might as well give it a try.View Thread
Well now, I think I may need some brain bleach for what I just saw. What a group of disturbed individuals. I can't imagine that these guys aren't in constant pain. Though, that appears to be what they are going for.
That makes our injuries look like a scratch. If they can come back from that kind of torture, then we can surely recover.
I'm definitely looking forward to this nightmare coming to an end. It's the only thing keeping me going at this point.
I asked my Urologist about getting a steroid cream last time I was there, but he doesn't like to listen. He just casually shrugged it off like I didn't even say anything. I can't afford any more doctor visits right now, especially when I'm not getting any help. Very frustrating.View Thread
We are just the lucky ones Vik. I'm right there with you man, I feel the same way. If I really ranted, I'd probably be put in a mental institution, so I'll just keep that to myself.
But, I don't think that this is going to be a lifelong thing for us. If it keeps improving, however slowly that may be, then there is hope. It might take years; years of pure fvcking hell, but it will be worth the wait.
I say that today, but I'm up and down on the matter. Mostly down, you caught me on an up mood.
As always, thanks for your advice. If I could afford it I would be going to doctors like crazy, but I can't. The mixed signals in the nervous system makes sense. There's no shortage of anxiety on my part.
As for the skin, like I said before, I don't really care about the appearance. The underlying issue causing it is the problem. I just thought clearing up the skin might also help resolve the underlying issue. I'm also thinking that if the underlying issue does resolve, but the appearance stays the same, then I might look down at my bird and convince myself that it is still injured when really it is fine.
Yep, had that thought many times throughout the past 9 months.View Thread
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