Ok - it has changed on here. I posted a question and had responses, which I had been answering. Now - how do I find my post. I use to go to "Drug and Supp" then I clicked "Dissuss w/ others" then I typed in my 3 words in the "search" box. I did the exact same thing today and it tells me "no matches". I was last on here 2 months ago? - I now some time has past but I would like to get there as I need to get some email addresses. Thanks.View Thread
Susie - thank you, thank you, thank you. Found them!! Yes, after clicking here and there and reading articles along the way, I saw on the top of a page "MS Exchange" I clicked on it and it took me onto another page where I typed "ms and hiv" in that little box and yep there they all were. Again thank you. (Oh - Debi gave me the wite for U of British Columbia) Will keep you informed. Eddie - Yardguy.View Thread
WOW - Susie - you did all that!! Thanks. I will keep trying. I am going to print your response and try all that. You would think when I type "ms and hiv" in that little box it would show me my past blogs but I think in their changing the format, the past blogs were lost - but I will def. let you know.
I will also keep you informed on here how it is going. So far I have emailed John H Univ and they emailed me back saying that they have not done any studies on anybody w/ both. They gave me some places to look and email - nope dead end. I emailed the NMSS and they told me to look at all the case studies on MS under their list of studies - nope - dead end. No studies on both of those. I can not remember right now why, but I had emailed the National Cancer Center. They emailed me with a long list of places to try, some of which I have tried already. One of the past blogs(one I can't find) someone told me to try San Francisco HIV/AIDS Center and check them out. Also a place in Vancouver - that is one of the web add. I need. Basically I am checking out any studies dealing w/ white blood cells in both MS and HIV. I am trying to keep my count down when it comes to MS because I do not want another attack. When it comes to HIV I am keeping my T-Cell count around 300 because I don't want my white blood cell count to go high. (my Infec Disease Doc is pissed) I am the only patient that both my Infec Disease Doctor and my Neurologist has ever seen that has both MS & HIV. I also have poly neuropothy in both feet and Carpul Tunnel in both wraist. I just can not believe that, so far, no one has studied ones w/ both these diseases and how medications effects both and how the white blood cells do in both these.
Thanks again Susie. (Hope I spelled everything correctly) Eddie - YardguyView Thread
After reading your last post, I went back and read what I typed. If you don't mind, can I go over what I did in the past. It was not under the "Drug" section. This is what I did: 1. I clicked on "HEALTH A - Z" 2. I then went to "MULTIPLE SCLEROSIS" 3. I then went to the left side of screen and clicked on "TALK WITH OTHERS ABOUT MULTIPLE SCLEROSIS" 4. That is where I blogged about if anyone knew of studies on MS AND HIV anywhere. Hope this helps. I am still looking where I can the replies. there were several and w/ emails. Again I believe it was about 3 months ago.View Thread
Oliva - After I clicked on "Talk w/ others....." , just like I did to get here, I typed in the 'SEARCH" box - "ms and hiv". When I was taken to that page I looked to see if anyone else had asked anything like that and they did not. I then typed out basically who I was, what I had, and the reason I was asking for help on this is because I am doing a research to see if anyone in the US has done a study and/or a case study on ones who have both (like me). I received several answers and emailed them back and some had emailed me with sites to go to. Well, I guess I am not doing something correct because I can not fine it. I even went to "Hiv" and tried there - nope. So if you can fine all that it would be helpful. Plus I would like to give an update and where I am at the present w/ this as some have asked to keep them updated. (I know it has been around 6 weeks since then.) Thakks so much.View Thread