Parenting: Preemies Community
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I just turned 36 yesterday and I was born 3 months early. I weighted in a 1 lbs 3 oz. I stayed in the hospital for 5 months. I was brought home June 3 1980.
I was born with a collapsed long I had to get several pints of blood. I had vision problems, I had apparently not strengthened my eye muscle and had a crossed eye. Also had a hernia. (not sure which kind)
I know as I continued to grow I struggled with writing. I had to see an Occupational therapist to help me hold a pencil. I had tons of anxiety during school. It was rough. I was held back in the first grade. I struggled with making friends.
Socially as a kid I was always told that I asked a lot of questions. I was shy, and was considered a push over.
As I went through school I had anxiety. I always wanted to jump to the next topic. never smelled the roses...was always and still to this day really unorganized. I always tell folks, look at my drawers where my clothes are and thats how my brain and thoughts go. all over the map, can't seem to slow down.
I think sometime i have undiagnosed ADD/ADHD. I dont get hyper just distracted a lot.
In my adult years I was able to grauate from college, but i just skimmed by. didnt really apply myself. I have worked in the social services field and woked as a case manager, direct care worker, a program director.
I am about to embark on a new job as a personal health coach with Humana i start next week.
I have been married once and am divorced. I have a 5 year old daughter with my first wife. I have a 5 month old son with my girlfriend and its been tough not seeing my daughter so much but looking to change that here in the next few months.
I suck at finances and making decisions.View Thread



She weighed 1 pound - 21 inches long
Spent 8 very long months in the NICU
Was born four months early - I ruptured and lost all my fluid
She is now 20 years old and is still very tiny, weighs 85 pounds
She is learning to be more independentView Thread






My jaw dropped when I was reading your post. I can literally relate to you in every SINGLE way. I was also born 3 months early, weighting 1 pound and 13 ounces. I had PDA and needed only one surgery as well. We are both success stories!
I also experience and have experienced very similar problems academically. I was put in a separate reading class during elementary school, I consider myself HSP as well and have anxiety because I do stutter as well. I hope you're doing great and I realize this was 5 years ago but it's never too late. I hope we can reconnect and talk about our stories. We are literally the same story.






My worst-case prognosis was that i would be wheelchair-bound due to cerebral palsy, be blind, and be severely learning disabled. Thankfully, I am none of those things. I have slight spastic diplegia, but it has never been severe enough to be formally diagnosed as CP. I have mild, well-controlled exercise-induced asthma.
All I want to say is that sometimes, poor prognoses can still have good outcomes.View Thread



1. WEBINAR SERIES
We will be hosting our inaugural webinar series in November on the important topic of preemie nutrition. Experts will host sessions on breastfeeding, nutritional requirements for preemies and food allergies. To learn more or register for one of our sessions, visit www.pebblesofhope.org/webinar-series
2. THRIVE GUIDE
Pebbles of Hope is developing a thrive guide, which is an interactive tools with expert information, instructional videos and parent tips for preemie parents in underserved areas. We are calling on all preemie parents to share videos with their tips for how they help their preemie thrive and post to hashtag #PebblesThriveGuide. We look forward to hearing from you!
Please visit our website at www.pebblesofhope.org or find us on facebook at www.facebook.com/pebblesofhope to learn more.
You can also view a video my husband and I developed about our son's story at https://www.youtube.com/watch?v=3CRg0cU4NHQView Thread








un fortunately i experienced a bowel perforation at five days old and had to have a part of my bowel cut out as i was too small to stitch back up i lived with a colostomy bag for the first year or so of my life i also lived that in the hospital in a humidity crib most of the time. the doctors told my mum i should of died and was very lucky that i was born a girl and not a boy because if i was a boy i most likely wouldnt of survived as females naturally have a higher thresh hold of pain and more of a will power to survive so i guess you could say i was born a fighter.
as for learning difficulties i have Inatentive ADHD i wasnt diagnosed till i was an adult so as i child i thought i was dumb and slow because i couldnt keep up
when in the actual fact i was actually quiet smart i am actually pretty good at maths and science more then most.
Other problems i am coming across:
-i have had my gallbladder removed 3 years ago they say it never worked properly
-Abdominal pain
-more then one problem with my knees currently undergoing my 3rd surgery on my left knee and as for my right they keep putting it of and want to as long as possible its going to involve alott.
-Stress and Anxiety
-Hyper Flexability over my whole body
-i am allergic to latex and bandaids both sticky and wrapps
-my eardrums are unusually close to the out side of my ears but no hearing difficulties.
-An enlarged Optical nerve though i have perfect vision.
i dont know if this is a problem but i tend to bruise easily but have no supposed problems with my blood im sure theres more it seems every time theres something wrong the doctors put it down to me being born so early i think there should be a further study into premature babys as adultsView Thread































































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