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I hope you all have been able to enjoy some of your summer as the end is near. Although I'm having more good days than bad these days I do still have the symptoms very much, just on a lower, more tolerable level. Winters have always seemed to be harder on me and I am dreading another one. I won't stress about the winter to come like I used to. Instead I will enjoy today. A positive mind is a powerful thing!View Thread












I'm hoping everyone is having a great summer. Its hot here in VA! I'm ready for the fall!
Big gentle hugs to ALL.View Thread




Take the Poll
Poll Results
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Anyone with the same problem67% (2)
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Anyone with an idea what to do or take.33% (1)



I live in Meridian, MS. Need help getting through all the mixed emotions. I have a hose of issues.Cant find a group local.View Thread

Take the Poll
Poll Results
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Online discussion and/or group100% (4)
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Local group0% (0)
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No support0% (0)
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Family and friends support0% (0)
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Driving a distance for group0% (0)


For the past few months I have had a mysterious toothache. It's a sharp pain that comes and goes between two teeth. I went to my dentist and he saw nothing. He sent me to an endodontist who also saw nothing. I said pull it, but they think it might be from my fibromyalgia and that pulling it won't cure the pain.
Has anyone experienced this type of tooth pain? It is not sensitive to pressure or temperature. There nothing I, or the dentist, could do to make it hurt. It just comes out of the blue, last for a few hours, then disappears. Sometimes for a few days. Sometimes a few weeks.
I probably do clench my teeth when sleeping, but I've been doing that for years and years.
Does this sound familiar to anyone??
JaneView Thread





I have read all of your posts and also realize that they are older. I also struggle with numerous medical problems like most of you ( fibromyalgia, kidney disease, chronic migraines, rheumatoid arthritis, osteoarthritis, psoriatic arthritis, degenerative back disease which currently having bulging/herniated discs, spinal stenosis AGAIN! , underwent major back surgery for severe spinal stenosis and had a severe allergic reaction to the staples that was used to close up 10" incision, chtonic GERD & intestinal inflammation, Pancreatitis, uncontrollable high blood pressure, sleep apnea etc....hopefully everyone can get the picture. In 2005 I was finally diagnosed with most of my health problems by an outstanding rheumatologist. He listened to me and prescribed meds plus opioid medications. He was out of state and I eventually had to stop going to him because I was falling asleep behind the steering wheel. I did find another doctor who did continue my pain meds due to the fact I was already on them. Eventually that doctor somehow changed the frequency of one of my medications (morphine) without telling me. It was originally written as "take as needed for break through pain/as needed". This doctor changed it to " take it 4 times a day". I never read the bottle as I have had the prescription written "as needed" for 11 years so I would have never thought to look at the bottle. I was asked to do a urine test which I had no problem with. I explained there wouldn't be any morphine in my system because it makes me tired and I was driving myself to be appointment and didn't want to take any chance of falling asleep behind the wheel (I already had done it once and hit someone head on ). Of course I failed. A month later I had to do another urine test and I informed them I wouldn't have any morphine know my system again explaining the reason again. I received a call 1 day later informing me I failed again ( I did pass both tests for all the other meds in my urine) due to NO morphine. I was told I would no longer be a patient of theirs due to the fact I didn't follow their rules & procedures. I was shocked!! Since then I have tried 9 different doctors and can't find HELP. Doctors are afraid. All they want to do is physical therapy (doesn't work) or trigger Point Injections (which I already get). I already have tried nerve burning (can't remember the medical term) & that didn't work. The current doctor who does my trigger point injections is awesome and soo knowledgeable informed that I'm not even a candidate for epidural injections (hurts like hell) in my lower back due to the fact there is soo much scar tissue from my 1 and only back surgery incision. I actually have an appointment on 8/23/16 to discuss a 2 day injection procedure she wants to try on me. In the meantime I have to wait to get a psychological appointment and pass in order for me to get a pain pump put in me by a neurosurgeon. This is required by the state of PA which is absolutely ridiculous considering I don't need one in order to have any other type of surgery. The neurosurgeon made me undergo an enscopy as he wanted to know why I had Pancreatitis. I did what he said and the reason was never found but my guess would be partially the large amounts of ibuprofen I'm swallowing trying to help with the pain.
Anyways...the doctor who does my trigger Point Injections gave me some advice about the pain medication. ..she told me that the government has cracked down on the doctors so hard that it's about impossible for them to write anything. She advise me to write to or visit with personally my state senator and explain in detail my situation. I think if we all do this and spread out the word to everyone who is also in chronic pain maybe we can get somewhere.View Thread

Take the Poll
Poll Results
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True Pain Clinic33% (1)
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Neurosurgeon0% (0)
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Rheumatologist67% (2)
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Family Doctor0% (0)
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Other0% (0)





I joined this board 15 years ago and the most amazing people here helped me and I continued to pay it forward as I had my journey with this disease.
I (we) felt abandoned by you. We lost our moderator, our champion physician and then upgrades for your webpage killed the site. WE TOLD YOU AND TOLD YOU. Well all have found other venues.
I have 3 different sites to attend to check in with everyone.
This boards saved many a life when the times were hard for them.
All I have to say is SHAME ON YOU. If you had told us you heard us.....you ere going to repair it....we mattered to the Web MD family.
Shame on you.
Nancy BView Thread



We have experienced all sorts of problems recently and finally someone did provide the note above.
FM is a mean and ugly illness to deal with and there are lots of good tools which will help you cope better. Please check out the info here under *tips* and *resources*. I am sure you will find something that perhaps you have not thought of trying which just might make a BIG difference in the way you feel.
Keeping a daily journal of sorts might provide yourself with some good info as to what is exactly going on with your body. Keep track of your pain levels, your activity, what you eat and drink and perhaps this will answer some questions about what you can do to improve the way you feel. It seems that a lot of us FMers cross our lines often which does NOT do us any good in the long run. We have to figure out when to STOP before we get to this point. Anytime you over do you will surely pay for this. It is kind of like taking one step forward and then several backward. It is important to learn how to pace in *everything*.
Drinking plenty of water is also a good *tool* to put into place, along with watching what you eat. (again your daily journal might reveal more of this for you to understand)
Doing gentle stretching and/or exercising is also good as well.
Taking a hot shower at night using lavender bath salts might also help relax you so that you can sleep better. Sleep is really important for us.
A mattress topper for your bed might also improve your sleep as well.
OK...this is just a few *tips* to help you get started. Welcome and I hope you will find something that will help you cope better soon.
Have a great day.
MiMi View Thread



Have a great day. Stay cool and remember to pace.
MiMi View Thread



I do hope each of you had a good peaceful and restful night and I hope today will be a good day for us all with little to no pain.
I rested ok. Yesterday I crossed my line....which I seem to do a lot these days. It seems that I can NOT do much of anything without paying for it.
As for the changes here.....I have no idea what is going on. I do hope someone will let us know but I do encourage anyone who wants to save perhaps their profile info or any other posts to be sure and *copy* them soon....since we do not know when they will no longer be here.
Welcome to any new members. Please read the above *message from WebMD*....changes are being made on this site. (this is all we know).
OK....have a great Monday and remember to pace, drink plenty of water and try to stay cool.
MiMi View Thread



OK....so I finally made it to FB....Linda R. got me in. I hope others will follow. I will say that I tried to figure out just how to do this but was unable to do so. Perhaps one has to be invited? I do not know. I have been on FB for some time but do not know all of the *ins and outs of it*. We shall see.
Here is hoping each of you had a good peaceful and restful night and I hope today will be a good day for us all with little to no pain.
I did not have such a good day yesterday....had stomach issues and then some lower back pain again. Not so sure what is going on....if this is kidney stone related or something else. I go for my tests this next week so hopefully I will know something soon.
Our younger son fixed dinner for us to celebrate my DH's birthday.....we enjoyed the dinner but it was a wild time with the 2 little boys who have so much energy. One is big enough to help and the other one wants to do the same things as the big one does.....regardless. It was indeed an interesting time. The little one used the potty for the first time which was exciting for them. One step closer to getting out of diapers completely. I remember those days well. Diapers are quite *expensive* these days.
Not much going on in my corner of the world. I did get to buy 2 Christmas gifts this week.....(as I think we all know this holiday is just around the corner....whether we like it or not) . I decided that I needed to go ahead and get these 2 as I am sure they would be gone before long.....plus I saved $20 to boot. (love saving money). I had been looking at these 2 things for several months now and wanted to see if they would be reduced any.
OK....welcome to any new members who have joined or perhaps just lurking. Please remember to copy your post before you try to submit it....as it just might disappear into cyberspace or wherever it might land. (not sure anyone really knows what happens to them).
Also....please read the *memo* above about this site.....as there seems to be *changes coming soon*.
The info here will provide some good *tools and tips*....so try to read them NOW****before they disappear for GOOD. Perhaps you can *make a list* of what you might want to try. One never knows just what might work for them until they have tried it.
Vitamin D. Be sure and ask your doctor to check yours....as it just might be causing more pain.
Until next time.....have a good Sunday and remember to pace....drink lots of water and try to stay cool.
MiMi View Thread





I try to stay upbeat and laugh. If I go out anywhere, people say I look so good and am always smiling. IF they only knew. Lol.View Thread



The info above did not provide us with what exactly is going to take place. I guess we will soon know. SO I am thinking perhaps we should be sure and copy your profiles and then erase them.
OK....here is hoping better days are ahead. I can be reached at [email protected] for anyone who cares to contact me. I have tried to find the FB page but as it has been stated it is *secret*.
Have a great day and remember to pace. Stay cool and drink plenty of water.
MiMi View Thread



Welcome to any new members who have joined or to those also who just might be lurking.....I am sure you will find some good info here on this support site. Hopefully things will soon improve and we will not be faced with so many issues. (it sure took a long time for someone to finally address the issues - but hopefully someone knows and are trying to work on them).
I am feeling better now. After several days of lower back pain....I think I am on the mend. I go next week for a ultrasound of the kidneys....I still do not know IF I have passed the stone OR it is just laying low. I can tell though that something is different. I am thankful.
Not much going on today in my corner of the world. DH has taken off today and is helping his brother in law with some repairs at their lake house. I sure hope they are both careful. They are both getting older and should not be climbing on top of houses these days. I think there is a leak though which needs to be fixed. DH will be another year older tomorrow.
Only 2 years to go for retirement....IF he decide to. Lots of things to consider and so much to figure out. This is not a good time with so much going on.
OK...have a great Friday and remember to pace.....drink lots of water and try to stay cool.
MiMi
View Thread






OMG*****so that's my rant for today. It seems to always be one thing or another....these days. Always something to deal with.
Welcome to any new members who are lurking and trying to find something that might help you cope better. Again I want to be sure and include getting your Vitamin D level checked....low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. This is a simple blood test but you must ask the doctor to run it......as most of them do not include it in the *normal bloodwork* that they do.
I did sleep better last night and I can tell a difference in the way I feel today.....(at least, for now). Perhaps things will look up.
Have a great Thursday and remember to pace....try to stay cool and drink lots of water too.
MiMi View Thread




I would like to ask if anyone can recommend a mattress for a fibro suffer. I have tried memory foam (too hot and I developed TOS from my shoulders rolling up) so that went. Next latex. Too hard, too soft, hot and I'd bottom out (I weigh 205) so my hips hurt. I I simply can't find an old fashion box spring and mattress without memory foam, latex or a combo of same. This includes the "cool gel impregnated foam. I have had 40 surgeries with every major joint replaced, (hippos, knees, shoulders) plus the thumb joints of both hands and half my toes on one foot fussed. I feel hopeless.View Thread



It is amazing what we can view sitting at home from the touch of a mouse. My little GS and I found a live cam site where we can watch all kinds of animals from as far as Africa. It is explorers live cam. Be sure and check it out. Yesterday I was viewing this watching bears from Alaska. There were visitors taking pictures on one side of a body of water of 2 brown bears. I continued to watch this and within a short period of time the bears entered the water and swam over to the exact place that the visitors had been. I do not understand this at all....but I do not think I would have liked being this close to where bears live and roam. (the visitors had moved along before this took place but it seemed quite dangerous to me). I especially like watching the bears trying to catch their dinner. Sometimes I get to see only a couple and sometimes there are quite a few gathered in the water trying to catch salmon trying to get back upstream.
I did rest better last night and I hope each of you had a good peaceful and restful night and I hope we all will have a good day with little to no pain as we go about our Wednesday.
Welcome to any new members who have joined our support group or who just might be lurking. We are still experiencing some *issues with posting* so I do encourage you to be sure and copy your post before you tried to submit it.....so IF it happens to disappear into cyberspace or wherever it might land...you will have a copy to resubmit it without losing the post you did.
I also want to mention Vitamin D and just how important it is to get your doctor to check it and then keep tabs on this through the year as well......(at least have it checked once a year - more IF it is extremely low). Low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. It does require a simple blood test BUT you must ASK your doctor to do this.
New members should also check out the info here under *tips* and *resources*.....review the *sharing the toolbox* and *Dr. P's discussions* as well. (Dr. P is no longer here but he left us with some good info).
School is just around the corner now. The stores are filled with all kinds of school supplies that the children will need. I checked yesterday to see if I could find my GC's school supply list. They were either out OR they have not gotten them yet. I help them get their supplies every year. It is important for children to have what they need to learn.
OK.....that's my story and I'm sticking to it. Be sure and try to stay cool.....drink lots of water and remember to pace.....as this does help.
MiMi View Thread



I went to the doctor yesterday and will be going for an ultrasound on my kidneys....next Tuesday was the earliest I can be seen. You know they have to get everything *approved* these days which can take a while. Last time I needed the CT I ended up in the ER*....for over 5 hours or so. I hope this will not be the case this time. The doctor said that it is possible that the stone has lodged somewhere which is causing the issues I am having. I am a bit better. I got a prescription and dropped it by to be filled and was told they did not have it.....hopefully they will get it today....if not, then I will have to go back to pick it up and take it elsewhere. It is always something to deal with. Seems like this is the *normal* these days. Nothing is ever as it seems.
OK....enough on my soapbox for the day.
I do hope each of you had a good peaceful and restful night and I hope today will be a good day for us all with little to no pain.
It is going to be another hot day here in NC...with a chance of showers as well.....the week-end prediction is close to 100*.....we have had 19 days of 90 plus days.....It seems that the weather never suits me anymore. I do not know exactly what happen....we did not have much of a spring where I normally enjoy and I guess the fall will be the same....perhaps too warm or too cold.
Welcome to any new members who are lurking or who might be trying to figure out what is going on with posting....I do hope new members will be sure and *copy your post* so that if it disappears you can resubmit it. (sometimes it takes several times for it to show up - sometimes we do not expect it to show up and it appears several times)
New members can find some good *tools and tips* here though....IF the site lets you *see them*. IF not...then try again. Sometimes it works and sometimes it don't.
Remember to pace and drink plenty of water and try to stay cool.....which is important to all of us.
Have a great Tuesday.
MiMi View Thread



I did not have a good week-end at all. I am hoping things will get better soon though. I am not quite sure what, if anything, can be done about the kidney stones. I was lucky to have some medicine which helped this time. I tried to make it last as long as I possibly could. This has not been fun at all though. I hope I do not have any more to deal with after this.
Cory it was good to see your post. I hope things will get better for you too. Sounds like your week-end was busy. I guess your family is enjoying the new surroundings with the house.
Schools are gearing up for fund raising to help with the supplies that children need. I try to help my 4 get whatever they need....as the baby is now in pre-school and he has to have things too. Children need a lot to learn. The older they get the more they need. I have to wait for the school list to be released before I can do my shopping, for the most part. I know they will need paper and pencils...sometimes there are *certain types* or supplies which are listed though. Education is not cheap at all. Book bags do not last long either. I guess there is a reason for this too.
Welcome to any new members who have joined our support group. I am sure that you will find some good info here....be sure and check out the *tips* and *resources* sections.....review the *sharing the toolbox* and *Dr. P's discussions* as well.
Have a great Monday and remember to pace and drink lots of water....and try to stay *cool* if possible.
MiMi
WOW*****so I see my profile picture changed. View Thread



OK....so I was checking out the *my profile* up in the right hand corner of this page. Normally I go to the *my community profile* on the left hand side right under the *about this community*. So I tried to change my picture. I do not know yet whether or not it is going to work but I guess I will find out.
Here is hoping each of you had a good peaceful and restful night and I hope today will be a good day for us all with little to no pain.
Not much going on except it is a bit cooler....for now anyway. NC has had lots of days with 90* plus temps....and lots of showers too. It has been an interesting summer to say the very least.
Welcome to any new members who might be lurking and any old members who have joined us again. It is always good to know that you keep us in mind and stop in every now and then to see how things are going. It seems that we are still having some issues with posting but hopefully this will get fixed soon.
I do encourage everyone to remember to copy your post before you try to get it accepted....just in case it disappears into cyber space or wherever it happens to land....perhaps never to be seem again. And then sometimes it appears multiple times....(like mine did yesterday - I guess 3 times is better than none?)
Check out the info here under *tips* and *resources*....as well....review the *sharing the toolbox* and *Dr. P's discussions* as well...(if you are lucky enough to find them - as I have not looked recently) .
Hang in here with us as you see fit. Remember to pace and drink lots of water too....as it really can make a difference in how you feel.
Have a great and safe Sunday. Thoughts and prayers go out to those who have had *issues* with whatever. I do wish for *world peace*.
MiMi View Thread



Life is a shipwreck but we must not forget to sing in the lifeboats - Voltaire
I'm sorry to say that I haven't posted for about 4 years . I'm still struggling with Fibromyalgia. i tried to stop my Lyrica cold turkey but that lasted only a week. I am now trying to reduce the mg's in my Lyrica capsules. I am down to 75 mg 3 or 4 times/day but I hurt all over almost every day. It's been about a month or so now.
MiMi, I am retired and on medicare. I have a medicare advantage plan called Humana Gold. So far, I haven't renewed my Lyrica as I've been living off leftovers. I plan to call Walgreens next week to ask them what it would cost to get it filled. I don't understand the donut hole or much of anything. I know that with Advantage plans, you pay little or nothing each month but there are copays for everything. My doctor...$15. A specialist...$45. Physical therapy...$165 per visit....etc. Surgery is probably through the roof. Regular Medicare Supplemental plans have higher monthly fees....over $100 to over $200, but you pay less for everything else.
The good news is that you can switch every year, if you need surgery, you might be able to put it off until next year and choose a plan that covers it in October during open enrollment.
I have a friend who recently lost her 14 year old dog. Her husband died about 190 years ago and she and that dog were as close as can be. When my dog, Samson, passed about 4 and a half years ago, someone kindly sent me a poem about a bridge to heaven and our beloved pets waiting for us. I lost that poem. It certainly helped me at the time. If anyone knows what I am talking about and has a copy they can send me, PLEASE let me know. Thanks so much.
Soft hugs to all of you at this site and especially to folks like MiMi, who keep it going.
Love,
maggieView Thread

Life is a shipwreck but we must not forget to sing in the lifeboats - Voltaire


I do hope each of you had a good peaceful and restful night and I hope today will be a better day for us all with little to no pain.
Have a good day and remember to pace. (more later if I can do it)
MiMi View Thread

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