Karen's Unspecified Non Hodgkin's Lymphoma

My exchange if for anyone interested in viewing my 2nd journey through ... more

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swelling in child

My six year old daughter has a swelling in her upper thigh/iguinal area. A rash was present near the swelling...

Posted by An_266787

0 Replies | Share this:swelling in child My six year old daughter has a swelling in her upper thigh/iguinal area. A rash was present near the swelling...

Reply: Please Give Me Your Thoughts: Swollen Lymph Nodes

Well I don't like to give people bad feelings about what they may be going through. I can tell you what...

Posted by undefined

Well I don't like to give people bad feelings about what they may be going through. I can tell you what happened to me and I am not saying this is what is happening to you ok? Think good thoughts don't think the worst that's what I want to say first.
In 2010 I had been having several infections like you and went through all the doctors telling me it could be this and that but no one was doing anything so I found a different doctor and asked for a sonogram o be run on the lymph node in my neck to make sure it wasn't something that I was just over reacting about. They did that and soon after I was refered to a doctor to have a biopsy on it and see if they could find any cancer cells to worry about. Now comes the bad part I had the surgery and the surgeon came up to me while I was still just barely lucid after and surgery and said I am sorry Ms. Smith you have cancer. wouldn't tell me what kind and it was on a Friday so I had to wiat until Monday to find out what it was and how to fight it. I just so happened to have Hodgkin's Lymphoma and was told it was very curable but not the terrible things that I would have to go through to win the battle. But listen to me you can do it if it is the worst thing you want to hear you can fight it and win. so go in with that attitude and remember when you run out of strength at times find those that you can lean on. I just so happen to have a large and caring family and my daughter was seventeen and dropped out of school to help me fight this. I did not want her to do that but she was determined that that was what god had put her here for. To take care of me when I couldn't do it. she always said mom you took care of me when I couldn't do it for myself even though I told her it was my job she was my baby girl she said yes and now its my turn. You just go to sleep and let me battle this for you. of coarse I couldn't do that I fought and fought for a long year and there were times I didn't want to keep going but I made it and am cancer free and have been now for almost five years. So I just want to say to you take charge of those doctors demand more that just antibiotics if you have had them that many times there is something not right. Make them find out what it is. Maybe it is nothing maybe you are just in a weak point in your life and need vitamins or some such. Maybe you just have lymphedema that is where you lymph nodes swell up and you have to have lots of strong antibiotics and eat right and take care of you. Get rest. lots of it if you can. If you are the partying type give it up you health will get better and then you can go back to it but do it with a better view of you and what you need to stay healthy. If you need someone to talk to post back I will be here. Good Luck and Prey it helps too.View Thread

Posted by undefined

1 Reply | Share this:Please Give Me Your Thoughts: Swollen Lymph Nodes Well I don't like to give people bad feelings about what they may be going through. I can tell you what...

Reply: lymphoma or not? somebody give me an answer!

a ct guided biopsy is not painfull they can give you a little medication to calm you then you will stay on your...

Posted by spiprn1

10 Replies | Share this:lymphoma or not? somebody give me an answer! a ct guided biopsy is not painfull they can give you a little medication to calm you then you will stay on your...

Reply: Do I have Lymphoma? Please help!

Hello, I hope everything goes better with you. I just want to send you a message of hope and courage. I had...

Posted by ionut1968

1 Reply | Share this:Do I have Lymphoma? Please help! Hello, I hope everything goes better with you. I just want to send you a message of hope and courage. I had...

swollen armpit lymph nodes

I have had a swelling under my right armpit for 4 months now. I had a mammogram about 3 weeks ago and it was...

Posted by tndiuka

0 Replies | Share this:swollen armpit lymph nodes I have had a swelling under my right armpit for 4 months now. I had a mammogram about 3 weeks ago and it was...

Peripheral T cell lymphoma

My 29 year old daughter had what looked like a normal cold sore on her lip in December. It great bigger...

Posted by worriedmama1963

0 Replies | Share this:Peripheral T cell lymphoma My 29 year old daughter had what looked like a normal cold sore on her lip in December. It great bigger...

Peripheral T cell lymphoma

My 29 year old daughter had what looked like a normal cold sore on her lip in December. It great bigger...

Posted by worriedmama1963

0 Replies | Share this:Peripheral T cell lymphoma My 29 year old daughter had what looked like a normal cold sore on her lip in December. It great bigger...

My son is very sick in the hospital

My son had a pet scan done was in a lot of pain night sweats are bad pale skin almost transparent on the pet...

Posted by debbiann

0 Replies | Share this:My son is very sick in the hospital My son had a pet scan done was in a lot of pain night sweats are bad pale skin almost transparent on the pet...

not sure whats wrong

so, i have had some enlarged lymph-nodes for about two years now, one on the left side of my neck, one on the...

Posted by Tulakz

0 Replies | Share this:not sure whats wrong so, i have had some enlarged lymph-nodes for about two years now, one on the left side of my neck, one on the...

BIOPSY

What can I expect if I were to have a biopsy in my chest area. nervous as hell here Fred

Posted by An_249913

0 Replies | Share this:BIOPSY What can I expect if I were to have a biopsy in my chest area. nervous as hell here Fred

Help! What's wrong with me?

I am 33 yo female and started having severe joint pain early this week. Saw my primary care doctor because I...

Posted by Tlarsen79

0 Replies | Share this:Help! What's wrong with me? I am 33 yo female and started having severe joint pain early this week. Saw my primary care doctor because I...

Reply: Father just diagnosed with NHL

First thing you need to consider is your concern for his health. Sounds like your very concerned. His age, his...

Posted by reubenm

1 Reply | Share this:Father just diagnosed with NHL First thing you need to consider is your concern for his health. Sounds like your very concerned. His age, his...

New to This

Hi... so my mom and I are very new to this whole CANCER thing... its about my mom she had thyroid cancer...

Posted by HeatherShell

0 Replies | Share this:New to This Hi... so my mom and I are very new to this whole CANCER thing... its about my mom she had thyroid cancer...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

I just noticed a swollen lymph node on right sid...

It maybe be nothing, but it does causes to ee troubling to me. I do have thyroid problems, been taking pills...

Posted by cindigal

0 Replies | Share this:I just noticed a swollen lymph node on right side of neck It maybe be nothing, but it does causes to ee troubling to me. I do have thyroid problems, been taking pills...

Reply: Just found out now going for 2nd opinion...

Please let me know how this is going for the both of you. Are you getting any emotional support from other...

Posted by Holdol19

1 Reply | Share this:Just found out now going for 2nd opinion... Please let me know how this is going for the both of you. Are you getting any emotional support from other...

I am desperate, I have no where else to ask for he...

I have been battling with my health since TMJ came to my life in 2009. I was diagnosed with it in late 2010. But...

Posted by goolar

I have been battling with my health since TMJ came to my life in 2009. I was diagnosed with it in late 2010. But since late '10 I have been in constant war with my pains, lymph nodes and dehydration

Started with chest/breast pain I have been to many, many doctors and specialist and nothing. Cardiologist, Neurologist, GI's, General doctors, ER's...the list goes on. I'm 24 years old, female and have become depressed lately.

I discovered my 1st lymph node in summer of 2010, my doctor at that time said it was a cyst (concluded that because of my severe acne) so I believed her. she sent me to do an mri of my neck.. normal.

months went by and it went away, then it came back out in april of 2011. ever since only on my neck, my new doctor (at that time in april) said it was a viral infection put me on valtrex, the nodes went away (so i thought) I had an upper GI, xray, ct scan done on my chest and nothing. I got very dehydrated that year multiple times as well as hospitalized. during that year my stomach began to hurt, so I was setn to do a colonoscopy and endoscopy...even an ultrasound. normal... hida scan; normal

til this day my stomach is in pain, my chest, my left underarm, my neck gets stiff when the lymph nodes come back, recently been in really bad headaches and neck aches. my back is worst.... my legs get itchy and are dry, i get random feelings of itchy skin all over. doctors say its just anxiety. they have leaned on that since my heart has been on a rate of 140+ (three cardiologist checked me and said that my heart is healthy) doctors say it isnt lymphoma.though some in emergency have concerns they keep sending me back home. blood works come back normal too

i guess to relieve my worries they said many tmj patients get fibromyalgia... i dont know what to do or believe. i have been to so many doctors and i am so desperate i came here. i even went to los angeles for help ended back here in nyc...crying isnt an option since that wont help.

i feel breathless, fatigued. the nodes on my neck are there, steady... i dont know what to do. my doctor left her clinic left me a referral to see a hematologist in june 11...I was supposed to be seen in april but I got pushed back, twice.

i left my job and dropped a few classes because the pains are unbearable, the medications don't work and no one is helping me.View Thread

Posted by goolar

0 Replies | Share this:I am desperate, I have no where else to ask for help. I have been battling with my health since TMJ came to my life in 2009. I was diagnosed with it in late 2010. But...

Reply: What do i expect?

I'M 38 AND HAVE HAD A SWOLLEN GLAND IN THE LEFT SIDE OF MY GROIN FOR 6 MONTHS AND THE DR'S SAY ITS A...

Posted by mommatweety

Take the Poll

I was just diagnosed with Lymphoma based off a CT scan? The Va doctors don't even have the Pet scan results and my biopsy is scheduled for Monday. Is a CT scan with a physical exam and blood tests enough to diagnose me correctly?

1 Reply | Share this:What do i expect? I'M 38 AND HAVE HAD A SWOLLEN GLAND IN THE LEFT SIDE OF MY GROIN FOR 6 MONTHS AND THE DR'S SAY ITS A...

NHL - beginning chemo tomorrow

My wife has been diagnosed with NHL, large cell, B cell. It has been found in her lymph system and bones....

Posted by Ginger1124

0 Replies | Share this:NHL - beginning chemo tomorrow My wife has been diagnosed with NHL, large cell, B cell. It has been found in her lymph system and bones....

Sounds like NHL, but not sure - looking for sugges...

I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two...

Posted by IsolatedThunder

I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two years I've been tested for everything under the sun, and the docs keep coming across "incidental diagnoses," but then tell me that the things they find (hereditary hemochromatosis, non-toxic multinodular goiter) are not what's causing my symptoms. I just had a biopsy this week on my thyroid nodules, which I really believed was the problem because of my symptoms: I've had increasing difficulty swallowing for the past year and a half or so, difficulty getting a deep breath (feels like I have to work at it), the feeling that someone is standing on my sternum, pain that is sometimes just in my chest, but most often all around the rib cage, (feels like my ribs are squeezing me very tightly), and the past couple of months my neck has started occasionally swelling, usually on the right side but sometimes on the left too, and from time to time the feeling that I'm being choked by someone. My primary dr. said he could see that the sternomastoid muscles in my neck were swollen just by looking at me. Now the skin on the neck occasionally turns red when this happens, and feels hot. The most frequent thing in the neck though is that there are no visibly swollen nodes, but my neck feels full, feels like the right side is bigger than the left, it hurts and the skin feels hot. I also get weird, random pains in my head, behind the ears mostly, but occasionally just in the back of the head, or, lately, in the right ear too (though not like an earache). My right collarbone has been hurting too, above and below it. Sometimes the pain seems to radiate from the right ear, down the neck, and around the whole area.

My father had Non-Hodgkin's lymphoma, and more than likely had the hemochromatosis, but there is no way to verify that, since he died before I was diagnosed, and we had never even heard of it. I seem to be following in his footsteps when it comes to having miscellaneous health problems all the time.

They said my biopsy was benign. The results say there were "mixed follicular and hurthle cells" and colloid and something else, and that that is consistent with non-toxic multi-nodular goiter. If that's not what's causing the pain, swelling, choking, difficulty breathing and swallowing, etc, then I don't know what could be...unless it is lymphoma. But I don't know as much about lymphomas as I do about my symptoms, and have questions.

Is it possible to have lymphoma and not have visible or palpable nodes? (There is only one on my right that I can feel, about the size of a pea or almond, but the docs don't seem to notice it). I had a staph infection in 2001, and for years now I feel that particular node off and on; the more tired I am (and I'm exhausted all the time), the more I feel it. Are there things here that aren't consistent w/diagnosis of NHL?

Another couple things are that I've had horrible bone pain lately in my pelvic bone (tailbone level, roughly), and for four or five years have had that pain in my left iliac crest on the pelvic bone. Also, recently I've noticed that after having a glass or two of wine, my neck and ears are hot and a little red.

If anyone has anything at all, any suggestions or anything, I'd be so grateful. I don't even care what the diagnosis is at this point - I just want one so I can figure out what it is and how to deal with it. The thoguht of going on like this indefinitely never knowing what it is has just gotten to be too much.

Sorry this was so long. I'm just feeling desperate anymore.

Thanks everyone.View Thread

Posted by IsolatedThunder

0 Replies | Share this:Sounds like NHL, but not sure - looking for suggestions. I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two...

Roller Coaster Ride

My Mom had B-Cell Lymphoma in nodes in her neck in 2004-2005. She was cancer free until diagnosed...

Posted by DaughterOfCancer

0 Replies | Share this:Roller Coaster Ride My Mom had B-Cell Lymphoma in nodes in her neck in 2004-2005. She was cancer free until diagnosed...

New to this Community and have had NHL twice

I've had NHL twice the first time my doctors said I wouldn't make it because the tumor encompassed my...

Posted by baseballgirl_22

0 Replies | Share this:New to this Community and have had NHL twice I've had NHL twice the first time my doctors said I wouldn't make it because the tumor encompassed my...

Questions and Concerns

Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Posted by EllasMomma1123

0 Replies | Share this:Questions and Concerns Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Questions and Concerns

Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Posted by EllasMomma1123

0 Replies | Share this:Questions and Concerns Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Swollen Lymph Node(s)

Went to the GP last week because I found a knot in my neck. I thought he would put me on antibiotics or watch it...

Posted by mitsyp

0 Replies | Share this:Swollen Lymph Node(s) Went to the GP last week because I found a knot in my neck. I thought he would put me on antibiotics or watch it...

Reply: SCARED with NHL -Anaplastic Large Cell, ALK(+), St...

My husband was diagnosed in 1999, he had the lymphnode under his chin cut out and told he had a 65% chance...

Posted by Tammyleigh9

2 Replies | Share this:SCARED with NHL -Anaplastic Large Cell, ALK(+), Stage IIIa??????? My husband was diagnosed in 1999, he had the lymphnode under his chin cut out and told he had a 65% chance...

Reply: Lump in neck

thanks for ur input! it definitly eased my mind and since posting originally the lump went down for the most...

Posted by prj5022

2 Replies | Share this:Lump in neck thanks for ur input! it definitly eased my mind and since posting originally the lump went down for the most...

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