Karen's Unspecified Non Hodgkin's Lymphoma
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In 2010 I had been having several infections like you and went through all the doctors telling me it could be this and that but no one was doing anything so I found a different doctor and asked for a sonogram o be run on the lymph node in my neck to make sure it wasn't something that I was just over reacting about. They did that and soon after I was refered to a doctor to have a biopsy on it and see if they could find any cancer cells to worry about. Now comes the bad part I had the surgery and the surgeon came up to me while I was still just barely lucid after and surgery and said I am sorry Ms. Smith you have cancer. wouldn't tell me what kind and it was on a Friday so I had to wiat until Monday to find out what it was and how to fight it. I just so happened to have Hodgkin's Lymphoma and was told it was very curable but not the terrible things that I would have to go through to win the battle. But listen to me you can do it if it is the worst thing you want to hear you can fight it and win. so go in with that attitude and remember when you run out of strength at times find those that you can lean on. I just so happen to have a large and caring family and my daughter was seventeen and dropped out of school to help me fight this. I did not want her to do that but she was determined that that was what god had put her here for. To take care of me when I couldn't do it. she always said mom you took care of me when I couldn't do it for myself even though I told her it was my job she was my baby girl she said yes and now its my turn. You just go to sleep and let me battle this for you. of coarse I couldn't do that I fought and fought for a long year and there were times I didn't want to keep going but I made it and am cancer free and have been now for almost five years. So I just want to say to you take charge of those doctors demand more that just antibiotics if you have had them that many times there is something not right. Make them find out what it is. Maybe it is nothing maybe you are just in a weak point in your life and need vitamins or some such. Maybe you just have lymphedema that is where you lymph nodes swell up and you have to have lots of strong antibiotics and eat right and take care of you. Get rest. lots of it if you can. If you are the partying type give it up you health will get better and then you can go back to it but do it with a better view of you and what you need to stay healthy. If you need someone to talk to post back I will be here. Good Luck and Prey it helps too.View Thread






I hope everything goes better with you. I just want to send you a message of hope and courage. I had Non Hodgkin Lymphoma, i had 2% chances to live and now i am cured.
Please pray and have trust in God. I have shared my story at http://cherishlife-trustingod.blogspot.ro/View Thread






Has anyone had this? I want as second and third opinion.View Thread



Has anyone had this? I want as second and third opinion.View Thread










FredView Thread






I have NHL, specifically B-Cell Follicular NHL. It was found in a tumor that was wrapped around my Spine and choking off the nerve column. They did rad treatmenst along with chemo treatments together. I will find out at the end of Jan. what the results of the treatment are. Through it all I did great and did not need any extra care. My Family checked on me daily and went to all the initial Dr. visits and asked alot of questions. I Hope and Pray that your Dad will conquer this and come through it all with Flying colors.View Thread






















carmorr64View Thread






Started with chest/breast pain I have been to many, many doctors and specialist and nothing. Cardiologist, Neurologist, GI's, General doctors, ER's...the list goes on. I'm 24 years old, female and have become depressed lately.
I discovered my 1st lymph node in summer of 2010, my doctor at that time said it was a cyst (concluded that because of my severe acne) so I believed her. she sent me to do an mri of my neck.. normal.
months went by and it went away, then it came back out in april of 2011. ever since only on my neck, my new doctor (at that time in april) said it was a viral infection put me on valtrex, the nodes went away (so i thought) I had an upper GI, xray, ct scan done on my chest and nothing. I got very dehydrated that year multiple times as well as hospitalized. during that year my stomach began to hurt, so I was setn to do a colonoscopy and endoscopy...even an ultrasound. normal... hida scan; normal
til this day my stomach is in pain, my chest, my left underarm, my neck gets stiff when the lymph nodes come back, recently been in really bad headaches and neck aches. my back is worst.... my legs get itchy and are dry, i get random feelings of itchy skin all over. doctors say its just anxiety. they have leaned on that since my heart has been on a rate of 140+ (three cardiologist checked me and said that my heart is healthy) doctors say it isnt lymphoma.though some in emergency have concerns they keep sending me back home. blood works come back normal too
i guess to relieve my worries they said many tmj patients get fibromyalgia... i dont know what to do or believe. i have been to so many doctors and i am so desperate i came here. i even went to los angeles for help ended back here in nyc...crying isnt an option since that wont help.
i feel breathless, fatigued. the nodes on my neck are there, steady... i dont know what to do. my doctor left her clinic left me a referral to see a hematologist in june 11...I was supposed to be seen in april but I got pushed back, twice.
i left my job and dropped a few classes because the pains are unbearable, the medications don't work and no one is helping me.View Thread





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My father had Non-Hodgkin's lymphoma, and more than likely had the hemochromatosis, but there is no way to verify that, since he died before I was diagnosed, and we had never even heard of it. I seem to be following in his footsteps when it comes to having miscellaneous health problems all the time.
They said my biopsy was benign. The results say there were "mixed follicular and hurthle cells" and colloid and something else, and that that is consistent with non-toxic multi-nodular goiter. If that's not what's causing the pain, swelling, choking, difficulty breathing and swallowing, etc, then I don't know what could be...unless it is lymphoma. But I don't know as much about lymphomas as I do about my symptoms, and have questions.
Is it possible to have lymphoma and not have visible or palpable nodes? (There is only one on my right that I can feel, about the size of a pea or almond, but the docs don't seem to notice it). I had a staph infection in 2001, and for years now I feel that particular node off and on; the more tired I am (and I'm exhausted all the time), the more I feel it. Are there things here that aren't consistent w/diagnosis of NHL?
Another couple things are that I've had horrible bone pain lately in my pelvic bone (tailbone level, roughly), and for four or five years have had that pain in my left iliac crest on the pelvic bone. Also, recently I've noticed that after having a glass or two of wine, my neck and ears are hot and a little red.
If anyone has anything at all, any suggestions or anything, I'd be so grateful. I don't even care what the diagnosis is at this point - I just want one so I can figure out what it is and how to deal with it. The thoguht of going on like this indefinitely never knowing what it is has just gotten to be too much.
Sorry this was so long. I'm just feeling desperate anymore.
Thanks everyone.View Thread



She was cancer free until diagnosed with the same cancer in her stomach on Nov. 22, 2011. This time the battle has been a fast roller coaster ride of hospital stays ranging from a week to 17 days,every other week. Each time she spends time in the ICU due to vomiting blood and having two procedures done to stop the bleeding.
At diagnosis she was told she had an 80% survival rate. In Dec. her doctor told her the tumor wasn't growing and he was happy with the way things were going. Two weeks later she was in ICU and we were told chemo wasn't working, the tumor was growing and there was nothing more that could be done.
We transported her home to the local hospital where she was placed on Hospice. We were told she would not survive the ride. Two days later she was awake, up and telling everyone she is going to beat this. She is tough and has too much to do.
Her cancer Dr was surprised to get the phone call from the local Dr saying she wanted to see him.
It has been two weeks since that ambulance ride. Mom is now home, kicked off of Hospice.
Her cancer Dr told her that if she gains weight he will send her to Mayo Clinic in Rochester, MN to have her entire stomach removed.
Does anyone have any experience with ... Lymphoma in Stomach? Stomach removal? Life after stomach removal? Mayo Clinic?View Thread



If anyone needs to talk I'm here and would like to help in anyway that I can and I'd also like to be able to talk to someone if I can from time to time too.View Thread

















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