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Thank you for reaching out! I copied your question and my response to our new WebMD community platform. You can see it here: https://messageboards.webmd.com/health-conditions/f/multiple-sclerosis/155/question-about-the-neuro-examView Thread












A recent randomized control study found that a very low fat, plant-based diet led to improved fatigue, led to a healthier body-mass-index (BMI) and improved metabolic biomarkers. It did not have any effect on disease activity shown on an MRI or significantly impact pain. I love that the impact of diet and exercise on MS is being studied, and I hope we continue seeing more and more being done!
You can read more at the link aboveView Thread



I'm not sure what you mean by smart drugs, can you provide a link or example for me to take a look at?
Thank you!
StephanieView Thread









These results are very positive, but clearly point out that further work needs to be done in order to reduce the risk associated with the procedure, and how to tell who will and will not respond to treatment.View Thread


Sorry to hear that you are in the midst of a relapse, hopefully the steroids have you feeling better soon! I have had similar symptoms where my arms have become hypersensitive, even the slightest touch hurt! The spinal sensation sounds like it could be a Lhermitte's sign. I'm assuming your neuro is aware of everything going on since you are on steroids?
Wishing you a speedy recovery!
StephanieView Thread


Are these new symptoms for you? If so it's important to let your neurologist know, you could be having a relapse. I hope you are feeling better soon!
StephanieView Thread



The National MS Society
http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/You-CAN!/Plan-a-Trip
Active MSers- Dave is a a jet setting travel expert living with MS who has taken the time to put together a huge list of practice travel advice:
http://activemsers.org/tipstricks/travelingwithms.html
Wishing everyone a happy and healthy summer!View Thread


Serious side effects including liver injury, skin reactions, and secondary immune conditions were seen in clinical trials, so Zinbryta should be reserved for people who have already tried at least two other DMTs.
It is always helpful to expand the treatment options for RRMS, but hopefully we will hear news soon about Ocrelizumab, which is anticipated to be the first DMT approved for progressive MS.View Thread


I do agree that it is necessary for you to see an MS specialist because without lesions your diagnosis is harder to make. Other conditions can cause o-bands to show up in the CSF, and in order for the test to be accurate they also need to measure how many o-bands are in the blood and compare the two numbers. Do you know if they did that?
It is also possible that you have Clinically Isolated Syndrome (CIS), in which case starting injections like you did could help delay the development of MS but again, I do think your case needs to be evaluated by an expert before proceeding.
I hope you get a more definitive answer soon, and if we can be of any help please don't hesitate to reach out!
StephanieView Thread






Here in the US we have 13 FDA approved medications to treat MS: http://www.nationalmssociety.org/Treating-MS/Medications#section-1. I'm not sure what is available to your brother in India, but typically if someone here is not doing well on Avonex we would try a stronger oral therapy or even one of the infusions.
All the best,
StephanieView Thread




This presentation includes a lot of tips, and even products, that can improve your intimacy and sex life-
http://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Research/Research%20Calls/Intimacy-Presentation.pdfView Thread



https://secure.nationalmssociety.org/site/SPageNavigator/WLK_HOM_splash.html;jsessionid=C2AF9433A0FAE01D129722D363F7BD02.app352aView Thread



It is extremely important for you to be well informed about what is going on with your own health. I don't think there is anything wrong with asking your doctor what you have been officially diagnosed with. As a healthcare provider I love to see my patients be actively involved in their care, and I do everything I can to encourage them to learn about their own health.
White spots on the brain can mean a wide variety of things, and sometimes they are just a sign of aging, so it's difficult for me to weigh in on what your diagnosis is. I would write down a list of questions, and go see your doctor

StephanieView Thread

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I'm sorry you have had to deal with such frustrating symptoms for so long without any answers! I do agree that seeing a rheumatologist is a good next step. They can help work you up for autoimmune issues, which it sounds like this might be.
Have you been experiencing dry eyes/mouth also? And did they test your ANA level with all your blood work?
I hope you get answers soon!
StephanieView Thread


I have had several patients get relief from their trigeminal neuralgia after gamma knife and/or glycerol injections. I hope it works for you!
StephanieView Thread










Do you know what vice-grips are? You need to get a pair and go attach them to the scrotum of this sad-sack of a doctor!
Do it with a smile of course!
DaveView Thread

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