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I hope that others who share this journey will soon look in here and talk about their own experience.
I really encourage you to look into therapy. Anyone whose life has been dramatically impacted by illness has a lot of loss to process and therapy can really help with this. It sounds like you need (and deserve) a lot of support and you're not getting it. Do you know of any support groups in your area?
Parkinson's Disease - Home Treatment -- Home treatment can help you adjust as time goes on and help you stay independent for as long as possible.
How to cope with a Parkinson's Diagnosis/Symptoms: http://www.webmd.com/parkinsons-disease/guide/parkinsons-coping
This link is for you AND your husband. This link is for those taking care of those with Parkinson's: http://www.webmd.com/parkinsons-disease/guide/parkinsons-caregivers
WebMD's Parkinson's Disease Health Center: http://www.webmd.com/parkinsons-disease/guide/parkinsons-living-managing
Support & Resources (you are NOT alone in this): http://www.webmd.com/parkinsons-disease/guide/parkinsons-support-resources
We are here for you ((hugs)).View Thread



It must be extremely hard for you to witness your mother go through this. My thoughts are with you. *hugs*
Here is information about hallucinations as it relates to Parkinson's on WebMD. I think that you will find it very useful.
Description of the stages of Parkinson's Disease: http://www.webmd.com/parkinsons-disease/guide/parkinsons-stages
Parkinson's Disease & Mental Health: http://www.webmd.com/parkinsons-disease/guide/depression-disturbances (**It says here that hallucinations delusions, and paranoia are possible complications of Parkinson's Disease**)
In addition, here is information about hallucinations from the National Parkinson's Foundation: http://www.parkinson.org/understanding-parkinsons/non-motor-symptoms/Psychosis
Considering these resources, it does seem that hallucinations/delusions/paranoia are complications that many people with Parkinson's Disease experience.
I hope this helps!View Thread



Thank you for sharing that. It is something that so many others with Parkinson's Disease can really relate to. I hope that you will continue to express yourself about what you are going through.
Do you have someone that you can talk to? Do you confide in a family member? Or maybe a friend? Or even, a professional? Parkinson's Disease can be a very isolating disease. It is important that you know that you are not alone.
Here are links to some information that you might find useful on WebMD:
Coping with a Parkinson's Disease Diagnosis: http://www.webmd.com/parkinsons-disease/guide/parkinsons-coping
Living & Managing with Parkinson's: http://www.webmd.com/parkinsons-disease/guide/parkinsons-living-managing
Planning Daily Activities with Parkinson's Disease & Energy Conservation Tips: http://www.webmd.com/parkinsons-disease/guide/parkinsons-daily-activities
Support & Resources: http://www.webmd.com/parkinsons-disease/guide/parkinsons-support-resourcesView Thread



I definitely think you should speak with a doctor about your symptoms. It's always better to be safe than sorry.
It's always beneficial to be informed about a potential diagnosis. Here is some information about Parkinson's Disease on WebMD .
Parkinson's Disease Health Center: http://www.webmd.com/parkinsons-disease/default.htm
If you don't have a doctor, and need assistance in finding one, here is the link to WebMD's Physician Directory: http://doctor.webmd.com/ . Perhaps, you can find one in your area.
Be sure to come back and update us!View Thread



Coping with a scary diagnosis is definitely one of the hardest things that a person will have to overcome in their lives. However, there aren't many resources out there for people who remain undiagnosed but still experience the same debilitating symptoms.
Have you spoken to a specialist? If you need assistance in finding one, here is the link to WebMD's Physician Directory: http://doctor.webmd.com/ . Perhaps, you can find one in your area.
Please keep us updated, and most importantly, DO NOT GIVE UP. You deserve to have your problem recognized, diagnosed, and treated.
View Thread



I'm so sorry to hear what you are going through. I wish I could give you a hug through the screen. Parkinson's disease is a very isolating disease, and those who are not suffering from it, simply do not understand your day-to-day struggles. My heart truly goes out to you.
I think that you and your husband should have an open line of communication and expression of your emotions. There is so much that you, as the person with Parkinson's, and he, the person who is married to someone with Parkinson's, are going through. Yes, he might be lonely doing things alone, but there is still so much that you can experience with each other....even if it's from the comfort of your home/living space.
Here are some links to information on WebMD that I think you will find useful.
How to cope with a Parkinson's Diagnosis/Symptoms: http://www.webmd.com/parkinsons-disease/guide/parkinsons-coping
This link is for you AND your husband. This link is for those taking care of those with Parkinson's: http://www.webmd.com/parkinsons-disease/guide/parkinsons-caregivers
WebMD's Parkinson's Disease Health Center: http://www.webmd.com/parkinsons-disease/guide/parkinsons-living-managing
Support & Resources (you are NOT alone in this): http://www.webmd.com/parkinsons-disease/guide/parkinsons-support-resourcesView Thread



Thanks for posting.
Here are links to information about Deep Brain Stimulation on WebMD:
http://www.webmd.com/parkinsons-disease/guide/dbs-parkinsons
http://www.webmd.com/parkinsons-disease/news/20110808/deep-brain-stimulation-may-offer-lasting-benefits-parkinsons-disease
http://www.webmd.com/parkinsons-disease/news/20140826/deep-brain-stimulation-safe-for-older-parkinsons-patients-study
http://www.webmd.com/parkinsons-disease/tc/parkinsons-disease-surgeryView Thread





Though trial results were disappointing, critics said the trial was flawed. I take 1000mg daily. I've just started L-Carnosine (no, not L-Carnotine). It's only been tested on 6 PD sufferers but all saw a remission of symptoms.There is one prescription drug worth looking into that is actually prescribed for MS - Naltrexone 4.5mg. it's cheap but has to be ordered from a compounding pharmacy. Make sure your blood levels of iron are in the normal range. PD sufferers often have low vitamin D levels. Some say upwards of 100ng/mL would be ideal.View Thread



- shortness of breath, wheezing, difficult breathing"
- My husband doesn't take Azilect, but I'm going to check his prescriptions.



farmishView Thread











Someone please advise.View Thread



He may have had something in his chemo to stop nausea but no one ever said anything but he never got sick either. Nor did he loose his hair. He took a multi vitamin, stool softners,
insulin (as he developed diabetes during chemo. The only other symptom he had was not blinking. Finally had to call hospice as I no longer could transfer him from the commode to the couch. 3 days before he died the University called and said they were willing to do treatments..We had waited for that call for 3 months. This came as his bed was being set up for hospice care. Then he was gone! It's been 5 years and I still do not know what killed him..death certificate says cancer...there was no cancer detected. Hind sight,, wish I'd had a autopsy but with hospice I think that's a no go?? Anybody out there have any ideas?View Thread








ofter researching on the net for advices to stop these symptoms i relise its going to worse and im only in the early stage , despite that im terrefied now , do you have any advise rather than taking med to stop it ?View Thread






Also, as for others, I have been (for 2.5 years, until a recent change) virtually disabled by being overwhelmed by visual sensory input. It turns out this tendency was being made horrifically worse by something I was taking for the colon/dysmotility problem: "Miralax" or PEG 3350.
I was advised to take this daily (off label use). Does work very well to overcome nonfunctional colon, BUT it took me 2.5 years (because I was assured that it doesn't even get absorbed by the body) to discover (recently) that it was making very many of my other PK sx horribly worse, plus adding some of its own. I lost my "stream of consciousness" and actually had to consciously force my mind to "update" my view of the world (especially when forced to drive). This seems to be at the root of feeling overwhelmed by visual input.
I know many are being told to use "PEG 3350" for this purpose, and for some of us it may make us VERY much worse, I believe because of the nature of our colon disorders. I am 75% better having quit it (except back to the constant battle of the colon).
I am going to try Lactulose if my doctor can ever remember to call in the prescription.
Good luck to all.View Thread




As all of you know, this disease is utterly horrific. It affects your life in everyway, and every task becomes nearly impossible. It is not clear to me why there is so little known about this disease. I have seen theories on what may cause this, but personally, I have not seen a lot of discussion from those suffering with this why think they developed this.
For me, I had been doing the same line of work for years, which required me to be on the phone nearly all day. I did not have a headset, and while I was on the phone, my neck naturally had to tilt, so I was able to multi-task. I believe this may have definitely contributed to this disease, but I also have severe anxiety, and when this flairs up, my ST really flairs up too. In addition, I was in a car accident several years back, and wonder if the trauma from it, also played a factor.
I am currently on a medication regimen that is working amazingly. I am able to hold my neck upright, and the only time my ST becomes apparent, is when my anxiety is at its highest. I also have severe neck pain, but this bothers me less than the inability to hold my neck up.
I was prescribed Trihexyphenidyl and Baclofen about a year ago, and within days, my symptoms decreased significantly. Then, one day, I realized I was holding my neck upright! Honestly, I couldn't believe it! I told people, it was if I had lost a leg, and it miraculously grew back! I seriously couldn't believe it, and I feared constantly that this would be a short-term fix. Well, it's been almost a year now, and my head is still upright! But again, it will flair when I'm under great duress. However, I've learned to manage these symptoms better, since I definitely do not want to live in chronic misery. I also do neck exercises, and rest more often when these symptoms occur.
In closing, I would highly recommend trying these two medications to see if they help you. Also, I would be interested in reading why you think you may have developed this disease.
Good luck everyone and I truly hope you find a way out of your living hell! Prayers to all of you!View Thread

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speech changes, writing changes etc are some of them. I guess treatments for people suffering from Parkinson's are more concentrated in the later stages. In the initial stages they are made to do a lot of physical and mental exercises like the ones mentioned in this http://www.c-care.ca/blog/parkinsons/cope-progression-parkinsons-loved-ones/View Thread



My question is this: Do people with Parkinson's know when they are having tremors or head moving back and forth or up and down or both?View Thread










I am 55 years old and have lived with PD for 8 years. Two years ago my neurologist recommended i consider DBS. I did some homework, and decided to give it a go. I decided to do my right brain first because my left side has the worst symptoms. It went extremely well.
So naturally I proceeded to try it on my left brain. Unfortunately the results were vastly different.
The DBS put in my left brain became infected (Propionibacterium) and after a few weeks the abscess gave me two grand mal seizures. The device had to be emergently removed (craniotomy). I was left with a fairly serious brain injury, and aphasia. It took 2+ weeks of rehab and many months of time to get back on my feet, but I was left with cognitive deficits.
Now my neurologist and my neurosurgeon (who i really like) are recommending we try again to implant a DBS in my left brain (Oct, 2015). They say (and I agree, based on what i have read) that I am still a perfect candidate for this solution.
So I write to find help with this decision. Could it work despite what happened the first time in my left brain? Is it crazy for me to to even consider this? Am i more likely to bleed/have a stroke? Do 'success rate' stats exist on this unique situation?
Please provide anything you can think of that might help me.View Thread







Please tell me if you know what I am experiencing. Also, my voice changes at times.
I am living in a assistant living home. I am 67 years old and wanting to be apart of activities but am struggling.
JudyView Thread




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