Parkinson's Disease Community

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Reply: No More Cooking

Hi there, I hope that others who share this journey will soon look in here and talk about their own...

Posted by editor_morgan

1 Reply | Share this:No More Cooking Hi there, I hope that others who share this journey will soon look in here and talk about their own...

Reply: hallucinations??

Hi there and thanks for posting, It must be extremely hard for you to witness your mother go through...

Posted by editor_morgan

1 Reply | Share this:hallucinations?? Hi there and thanks for posting, It must be extremely hard for you to witness your mother go through...

Reply: parkinson's diease

Hi angelwings6754, Thank you for sharing that. It is something that so many others with Parkinson's...

Posted by editor_morgan

1 Reply | Share this:parkinson's diease Hi angelwings6754, Thank you for sharing that. It is something that so many others with Parkinson's...

Reply: should I?

Hi maybeparkasons, I definitely think you should speak with a doctor about your symptoms. It's always...

Posted by editor_morgan

1 Reply | Share this:should I? Hi maybeparkasons, I definitely think you should speak with a doctor about your symptoms. It's always...

Reply: Undiagnosed

Hi there and thanks for posting, Coping with a scary diagnosis is definitely one of the hardest things...

Posted by editor_morgan

1 Reply | Share this:Undiagnosed Hi there and thanks for posting, Coping with a scary diagnosis is definitely one of the hardest things...

Reply: feet

Hi farmish, I'm so sorry to hear what you are going through. I wish I could give you a hug through the...

Posted by editor_morgan

1 Reply | Share this:feet Hi farmish, I'm so sorry to hear what you are going through. I wish I could give you a hug through the...

Reply: DBS information/experience

Hi there, Thanks for posting. Here are links to information about Deep Brain Stimulation on WebMD: ...

Posted by editor_morgan

1 Reply | Share this:DBS information/experience Hi there, Thanks for posting. Here are links to information about Deep Brain Stimulation on WebMD: ...

Includes Expert Content

Reply: Parkinsons vs Fibromyalgia

what is the best drug to combat fibromyalig

Posted by jimrod3

4 Replies | Share this:Parkinsons vs Fibromyalgia what is the best drug to combat fibromyalig

Reply: Alternative Treatments for Early Parkinson's Disea...

Physical exercise that gets the heart rate up has proven benefits. I do 30min on a treadmill daily. I use...

Posted by An_267735

1 Reply | Share this:Alternative Treatments for Early Parkinson's Disease Physical exercise that gets the heart rate up has proven benefits. I do 30min on a treadmill daily. I use...

Includes Expert Content

Reply: Shortness of breath

My husband with Parkinson's has just started having shortness of breath. I was reading through these posts and...

Posted by Raionach

38 Replies | Share this:Shortness of breath My husband with Parkinson's has just started having shortness of breath. I was reading through these posts and...

feet

I have had Pd for 10 years now my feet shake, my toes turn under and are painful. Gets hard to walk. Also I...

Posted by farmish

0 Replies | Share this:feet I have had Pd for 10 years now my feet shake, my toes turn under and are painful. Gets hard to walk. Also I...

Reply: Parkinson`s desease

Hi Parkinson70 - Did you get any suggestion for above mentioned problem? Or any medication cured your...

Posted by Parkinson123

1 Reply | Share this:Parkinson`s desease Hi Parkinson70 - Did you get any suggestion for above mentioned problem? Or any medication cured your...

Includes Expert Content

Reply: How quickly will Parkinson's progress from stage 1...

How could you possibly predict that?

Posted by An_267150

2 Replies | Share this:How quickly will Parkinson's progress from stage 1 to stage 3? How could you possibly predict that?

Vertigo and PD

I am 61 and was diagnosed 8 years ago. Last year I developed dyskinesia in my jaw in the form of a chewing...

Posted by Flgramma

0 Replies | Share this:Vertigo and PD I am 61 and was diagnosed 8 years ago. Last year I developed dyskinesia in my jaw in the form of a chewing...

Parkinsons patients and Colonoscopies

My moms got advanced PD and her primary care is asking her to have a colonoscopy based on CT scan results. How...

Posted by lajygal

0 Replies | Share this:Parkinsons patients and Colonoscopies My moms got advanced PD and her primary care is asking her to have a colonoscopy based on CT scan results. How...

Includes Expert Content

Reply: Can Chemo bring out hidden PD?

My husband showed no signs of Parkinson, never...he went through chemo for lymphoma and according to bone...

Posted by blackbarn2

3 Replies | Share this:Can Chemo bring out hidden PD? My husband showed no signs of Parkinson, never...he went through chemo for lymphoma and according to bone...

hallucinations??

my mom is stage 5 pd she has recently started hallucinating, she think people are in the house trying to hurt...

Posted by An_266644

0 Replies | Share this:hallucinations?? my mom is stage 5 pd she has recently started hallucinating, she think people are in the house trying to hurt...

need an advice

I'm 27 and tow weeks ago i was diagnosedwith pd ( i didnt know much about it actually) only after having...

Posted by An_266559

0 Replies | Share this:need an advice I'm 27 and tow weeks ago i was diagnosedwith pd ( i didnt know much about it actually) only after having...

Are the breathing issues a wearing off effect or s...

My 84 year old father has had Parkinson's for over 8 years. Since my mother died a few years ago, he's...

Posted by DaughterSusi

0 Replies | Share this:Are the breathing issues a wearing off effect or simply a symptom of Parkinsons? My 84 year old father has had Parkinson's for over 8 years. Since my mother died a few years ago, he's...

Reply: noise sensitivity

Oh my, yes. Wish I had time to tell all. Just last two days I had a PK attack, like i have been occasionally...

Posted by justhinkin

5 Replies | Share this:noise sensitivity Oh my, yes. Wish I had time to tell all. Just last two days I had a PK attack, like i have been occasionally...

Spasmodic Torticollis

I was diagnosed with ST about 2 years ago. The symptoms had been creeping up for years, until finally, I was...

Posted by Reiddeeds

I was diagnosed with ST about 2 years ago. The symptoms had been creeping up for years, until finally, I was unable to hold my neck up straight.

As all of you know, this disease is utterly horrific. It affects your life in everyway, and every task becomes nearly impossible. It is not clear to me why there is so little known about this disease. I have seen theories on what may cause this, but personally, I have not seen a lot of discussion from those suffering with this why think they developed this.

For me, I had been doing the same line of work for years, which required me to be on the phone nearly all day. I did not have a headset, and while I was on the phone, my neck naturally had to tilt, so I was able to multi-task. I believe this may have definitely contributed to this disease, but I also have severe anxiety, and when this flairs up, my ST really flairs up too. In addition, I was in a car accident several years back, and wonder if the trauma from it, also played a factor.

I am currently on a medication regimen that is working amazingly. I am able to hold my neck upright, and the only time my ST becomes apparent, is when my anxiety is at its highest. I also have severe neck pain, but this bothers me less than the inability to hold my neck up.

I was prescribed Trihexyphenidyl and Baclofen about a year ago, and within days, my symptoms decreased significantly. Then, one day, I realized I was holding my neck upright! Honestly, I couldn't believe it! I told people, it was if I had lost a leg, and it miraculously grew back! I seriously couldn't believe it, and I feared constantly that this would be a short-term fix. Well, it's been almost a year now, and my head is still upright! But again, it will flair when I'm under great duress. However, I've learned to manage these symptoms better, since I definitely do not want to live in chronic misery. I also do neck exercises, and rest more often when these symptoms occur.

In closing, I would highly recommend trying these two medications to see if they help you. Also, I would be interested in reading why you think you may have developed this disease.

Good luck everyone and I truly hope you find a way out of your living hell! Prayers to all of you!View Thread

Posted by Reiddeeds

Take the Poll

Why do you think you developed Spasmodic Torticollis?

0 Replies | Share this:Spasmodic Torticollis I was diagnosed with ST about 2 years ago. The symptoms had been creeping up for years, until finally, I was...

Reply: Parkinson's following chemo

How old is your husband? You can check for symptoms of Parkinson in your husband. A tremor that usually...

Posted by jonathan_baker

1 Reply | Share this:Parkinson's following chemo How old is your husband? You can check for symptoms of Parkinson in your husband. A tremor that usually...

Parkinsons and tremors

My boyfriend was diagnosed with Parkinson's about one year ago. My question is this: Do people with...

Posted by jillian55

0 Replies | Share this:Parkinsons and tremors My boyfriend was diagnosed with Parkinson's about one year ago. My question is this: Do people with...

My mom and confusion

My mom went in the hospital with back pain 3 weeks ago. She's had bouts of confusion once in awhile. After...

Posted by tleaver

0 Replies | Share this:My mom and confusion My mom went in the hospital with back pain 3 weeks ago. She's had bouts of confusion once in awhile. After...

Reply: Painful legs moving toes syndrome

Hello, I am a Dutch woman of 64, suffering about 7 years from PLMT. I am the only PLMT patient in the...

Posted by looplooplopo

26 Replies | Share this:Painful legs moving toes syndrome Hello, I am a Dutch woman of 64, suffering about 7 years from PLMT. I am the only PLMT patient in the...

DBS Questions

Hi I am 55 years old and have lived with PD for 8 years. Two years ago my neurologist recommended i...

Posted by An_265288

0 Replies | Share this:DBS Questions Hi I am 55 years old and have lived with PD for 8 years. Two years ago my neurologist recommended i...

Includes Expert Content

Reply: PD and Seizures

I started having seizures in 1962 and was put on all kinds of different meds since then, but have been on...

Posted by grandmother1n

3 Replies | Share this:PD and Seizures I started having seizures in 1962 and was put on all kinds of different meds since then, but have been on...

I have Parkinson's disease and feel scared

Is it normal to make faces, jerk my head or yell out? I can't function in large crowds such as stores,...

Posted by An_265233

0 Replies | Share this:I have Parkinson's disease and feel scared Is it normal to make faces, jerk my head or yell out? I can't function in large crowds such as stores,...

ESTROGEN AND PROGESTERONE AND PD

WHAT IS THE LATEST WISDOM ON WHETHER THESE HORMONES ARE BAD OR GOOD FOR PD?

Posted by sdekozan

0 Replies | Share this:ESTROGEN AND PROGESTERONE AND PD WHAT IS THE LATEST WISDOM ON WHETHER THESE HORMONES ARE BAD OR GOOD FOR PD?

Reply: Newly Diagnosed

This page has some great articles that I think you will find helpful. It includes information on...

Posted by atti_editor

1 Reply | Share this:Newly Diagnosed This page has some great articles that I think you will find helpful. It includes information on...

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