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What's Happening Now

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Survivors Sharing Stories - What do you think?

Hi - We are a group of survivors who believe the best help is survivors sharing our stories and insights. We...

Posted by gujingc

0 Replies | Share this:Survivors Sharing Stories - What do you think? Hi - We are a group of survivors who believe the best help is survivors sharing our stories and insights. We...

Reply: Wallenberg syndrome

Hi there, I'm so sorry to hear of your father's rare diagnosis. Have you spoken to your doctor about...

Posted by editor_morgan

1 Reply | Share this:Wallenberg syndrome Hi there, I'm so sorry to hear of your father's rare diagnosis. Have you spoken to your doctor about...

Reply: Fatigue after a stroke

Hi there, Have you spoken to your doctor about your persisting fatigue? Here is information on...

Posted by editor_morgan

1 Reply | Share this:Fatigue after a stroke Hi there, Have you spoken to your doctor about your persisting fatigue? Here is information on...

Reply: Swelling of foot after stroke.

How is your husband doing now? I hope that the swelling has subsided. If not, this article has some...

Posted by atti_editor

1 Reply | Share this:Swelling of foot after stroke. How is your husband doing now? I hope that the swelling has subsided. If not, this article has some...

Reply: fatigue long after the initial recovery

Ross, Thank you so much for sharing that article. it's "right-on" Describes my life a year after my stroke. I...

Posted by mikashot

2 Replies | Share this:fatigue long after the initial recovery Ross, Thank you so much for sharing that article. it's "right-on" Describes my life a year after my stroke. I...

Reply: Fatigue after a mini stroke

I'm still fighting after one year of suffering a mild stroke. Still have to nap each day. I posted a question...

Posted by mikashot

1 Reply | Share this:Fatigue after a mini stroke I'm still fighting after one year of suffering a mild stroke. Still have to nap each day. I posted a question...

Stroke patient at high altitudes

I suffered a mild stroke a year ago most likely due to corated(sp) artery blockage.I have regained all my...

Posted by mikashot

0 Replies | Share this:Stroke patient at high altitudes I suffered a mild stroke a year ago most likely due to corated(sp) artery blockage.I have regained all my...

Mild stroke Oct 24, 2016, recovery and miracle

a year before the mild stroke, I had a peripheral vision episode. the surrounding view darkened and I...

Posted by An_267718

a year before the mild stroke, I had a peripheral vision episode. the surrounding view darkened and I suspected a stroke and walked in to ER and though doctor did not confirm it, as my tests were fine, except for elevated cholesterol. Two weeks prior to 10/24/2015, I felt minute head rushes every other day and noticed when I picked up a call, by voice was throaty. Each time I felt the head rush, I popped in 2-3 Aspirins and I don't know if it helped. Went to my primary care for check, had cardiogram and given slips for MRI, cat scan and carotid scan. I couldn't get an appointment until 2 weeks after. A week after, got up from bed and my whole body was falling on left. I still went shopping, had a meal and afternoon, I thought of walking in to ER and was admitted already and confirmed it was a mild TIA stroke and in ICU 5 days before moving to rehab. My vision, my speech and walking were affected, and rehabbed for a month. It helped to read info in the net to understand what helps. I worked out my eyes right away and got rid of double-vision by working out my eyes, which I learned in the net and your tube. So amazed how rehab worked, even with just an hour 2x a day. I posted in fb my progress to my friends, and my social interaction and support from them was very helpful, I felt loved! I live alone and my family is in another country and my only contact with everyone was fb. My faith helped me too. I also listened to stroke recovery music in you tube as I lay down in hospital bed. I still listen to Powerful Brain recovery music all the time. I went back to work in Dec 12, 2015 already, and was ER 3x since for problems with potassium, dehydration and electrolytes imbalance. Recovering form stroke has been a learning experience for me and I hope to share these. I feel my body was reset inside after it was shocked by the mild stroke. I am very grateful for everything I have and I am still a work in progress, and will keep working on myself. A month ago, I felt as if an ant was crawling on my temple and it was actually inside my head. I read all sorts of stuff about it, some weird and gross. I just observed it and washed my head more often, just in case. The feeling of crawling was mild on other parts, mainly on side and sometimes I felt as if dirt or hair fell on my eyelid eye and I would try to remove it, but I learned it was nerve issue. whatever it was, it disappeared, and just occasional. The main problem I have now is a very sharp nerve pain from my 2nd toe on right foot, to my leg and above knee. I massage it and rest when I can stand it. I have limitations on my ability to walk, my pain starts and I can't go on. All in all, I am very lucky to be mobile, functioning normal at work. I am very careful though, as I was told within 2 years, there could still be a likelihood of a repeat stroke that can be stronger. Thank GOD I am still able and can support my family.View Thread

Posted byAn_267718

0 Replies | Share this:Mild stroke Oct 24, 2016, recovery and miracle a year before the mild stroke, I had a peripheral vision episode. the surrounding view darkened and I...

Reply: Amputation After Stroke?

Hello I had a stroke caused by a heart defect. I have the very same left foot leg problems. Massage helps...

Posted by raine1200

6 Replies | Share this:Amputation After Stroke? Hello I had a stroke caused by a heart defect. I have the very same left foot leg problems. Massage helps...

Reply: Does a TIA leave permanent damage

I have recently been told by a specialist that depending upon the severity of the TIA & the location in...

Posted by An_267472

1 Reply | Share this:Does a TIA leave permanent damage I have recently been told by a specialist that depending upon the severity of the TIA & the location in...

56yo F Left Temporal stroke with ashasia

I have a 30+ year history of migraines. Two weeks I had a stroke with continued aphasia. I mostly confuse my...

Posted by CannGann

0 Replies | Share this:56yo F Left Temporal stroke with ashasia I have a 30+ year history of migraines. Two weeks I had a stroke with continued aphasia. I mostly confuse my...

post stroke

anyone know of any exercises topromote elasticity in arm

Posted by An_267246

0 Replies | Share this:post stroke anyone know of any exercises topromote elasticity in arm

Reply: Cluster Strokes

Not sure if what my neurologist & your doctor have said to each of us is the same or not. But according...

Posted by MommabearM

1 Reply | Share this:Cluster Strokes Not sure if what my neurologist & your doctor have said to each of us is the same or not. But according...

Reply: Nausea post stroke

My Mom had an occipital stroke that spread to her thalamus. Neurologist told us the nausea and dizziness was...

Posted by DianeL1967

10 Replies | Share this:Nausea post stroke My Mom had an occipital stroke that spread to her thalamus. Neurologist told us the nausea and dizziness was...

im concerned about my father

my dad suffered multiple strokes last year in march, he has been showing familiar signs he was showing...

Posted by smileykaren88

0 Replies | Share this:im concerned about my father my dad suffered multiple strokes last year in march, he has been showing familiar signs he was showing...

Excessive sleep - mini stroke at 93 - normal?

My father had a mini stroke at age 93. No bleeding on the brain. He lost some movement in his left side. ...

Posted by JGU2016

0 Replies | Share this:Excessive sleep - mini stroke at 93 - normal? My father had a mini stroke at age 93. No bleeding on the brain. He lost some movement in his left side. ...

Includes Expert Content

Reply: Stroke and loss of vision

My husband suffered a stroke 9 months ago which took away his right visual field in both eyes, loss of...

Posted by Hoperunner

57 Replies | Share this:Stroke and loss of vision My husband suffered a stroke 9 months ago which took away his right visual field in both eyes, loss of...

Stroke and Intimacy

Back in May of 2015, as a result of an aortic dissection, I experienced a stroke that impacted the left side...

Posted by An_266781

0 Replies | Share this:Stroke and Intimacy Back in May of 2015, as a result of an aortic dissection, I experienced a stroke that impacted the left side...

Left pca stroke

I am 26 years old and I recently suffered a subacute left posterior cerebral artery stroke. I am fortunate...

Posted by Brandyn8907

0 Replies | Share this:Left pca stroke I am 26 years old and I recently suffered a subacute left posterior cerebral artery stroke. I am fortunate...

after affects of tia

July 4th I had a TIA stroke and was advised by doctor that it appeared fully recovered, however I'm...

Posted by lbrown01

0 Replies | Share this:after affects of tia July 4th I had a TIA stroke and was advised by doctor that it appeared fully recovered, however I'm...

post

I am posting a comment about strokes to get 5 points. Very nice.

Posted by backpain79135

0 Replies | Share this:post I am posting a comment about strokes to get 5 points. Very nice.

Reply: Multiple Strokes???

I am so sorry about your father. My father, who is 65 and in great health started having multiple multifocal...

Posted by YT_nyc

4 Replies | Share this:Multiple Strokes??? I am so sorry about your father. My father, who is 65 and in great health started having multiple multifocal...

What is your meaning of "Recovery"

Please visit me at: http://stroke.zohosites.com/ As a stroke survivor, I am doing a research project...

Posted by deborah163

0 Replies | Share this:What is your meaning of "Recovery" Please visit me at: http://stroke.zohosites.com/ As a stroke survivor, I am doing a research project...

Transient Cerebral Ischemia

does anyone know if Transient Cerebral Ischemia has anything to do with Agent Orange ?

Posted by Edwina26664

0 Replies | Share this:Transient Cerebral Ischemia does anyone know if Transient Cerebral Ischemia has anything to do with Agent Orange ?

Transient Cerebral Ischemia

does anyone know if Transient Cerebral Ischemia has anything to do with Agent Orange?

Posted by Edwina26664

0 Replies | Share this:Transient Cerebral Ischemia does anyone know if Transient Cerebral Ischemia has anything to do with Agent Orange?

Seeing myself as a victim not survivor

Hi my name is Deborah and I had a stroke at age 31 in 2001 on Christmas eve. My children were 5 and 8 and I...

Posted by deborah163

Hi my name is Deborah and I had a stroke at age 31 in 2001 on Christmas eve. My children were 5 and 8 and I was a single parent and sole provider for my two angels. Due to my age, no one thought it was a stroke until 3 days later. I lost the ability to read, retain memories and write. I had a drop right foot and a droop in my face. Because of my age, they told me I would completely recover and did not offer me any rehabilitation services, support services or disability. I had no advocate and could not process anything, except to say I was ok. Thank god for my boss, who allowed me to return to work and, even though he was not patient, continued to work with me and taught me a lot of ways to cope with my disabilities. 6 months after the stoke I realized I was not ok and could only find support from other young stroke victims online. [br>[br>Originally, I took the job to finishing my degree in English to become a teacher. 2 years after the stroke I registered for online classes and realized I could not do it, I lost so much and saw had no future. I begged for cognitive therapy through the NJ Brain Injury association and received it for only 6 months, which no longer exists due to NJ budget cuts. They were not interested in making me, me again, just a productive member of society, which I was deemed capable of doing without their help. 3 years after the stroke I was put on anti anxiety/depression medication and 12 years after the stroke I started having seizures from the original incident. I still feel more like a victim then a survivor. I hope to one day associate myself completely to being a survivor.[br>[br>After reading Jill Bolte Taylors book "My stroke of Insight" I have a more positive out look on life and I recommend her TED talk for everyone located online at https://www.ted.com/talks/jill_bolte_taylor_s_powerful_stroke_of_insight. Please check this out. She had a stroke and has a very unique story to share and a positive outlook. It helps so much to hear a different perspective. [br>[br>I am back in school and completing my last class prior to receiving my my Bachelors degree with a focus on Accounting. I changed directions and found a future for me since the seizure setback. I am researching rehabilitation and recovery for stroke patients. I am so fascinated in this subject, probably due to the lack of assistance I received and how much it has changed on the last 15 years. I welcome your stories, experiences and thoughts on the subject regardless of where you are in process. [br>[br>I posted an anonymus survey at
https://www.surveymonkey.com/r/HGC7DKY
Please feel free take my short 10 question survey for my project or if you are willing to participate in an interview I would love you to share your story, again anonymously.

Otherwise, I am here to to listen, an not use any your information toward my project, just because their are so many people that allowed me to vent and share process my frustration with them. It really helps to speak to others that truly understand, not just try to understand. Having a stroke is so much more complicated and no two strokes are the same. I had a stroke, I am still here and it has shaped who I have become, but it is not my entire identity. Learning that, allowed me to see a future and want everyone affected by a stroke to have the hope and not lose it like I did for a very long time.
DeborahView Thread

Posted by deborah163

0 Replies | Share this:Seeing myself as a victim not survivor Hi my name is Deborah and I had a stroke at age 31 in 2001 on Christmas eve. My children were 5 and 8 and I...

Reply: wallenberg syndrome and stroke

Hi Angela26, I too suffer from chronic nerve pain and other nagging symptoms left from an arterial dissection...

Posted by revjb

63 Replies | Share this:wallenberg syndrome and stroke Hi Angela26, I too suffer from chronic nerve pain and other nagging symptoms left from an arterial dissection...

Gag reflex failed can cause Vocal cord dysfunction...

I need help. I am from Malaysia. Yesterday my mother was choke (before she put something in her mouth) and she...

Posted by hallmi

0 Replies | Share this:Gag reflex failed can cause Vocal cord dysfunction VCD or Vocal fold paralysis??? I need help. I am from Malaysia. Yesterday my mother was choke (before she put something in her mouth) and she...

Stroke aftermaths

I had a stroke. Four years later, I had an episode related to the stroke that caused me to pass out.

Posted by An_264704

0 Replies | Share this:Stroke aftermaths I had a stroke. Four years later, I had an episode related to the stroke that caused me to pass out.

Reply: swollen face

Did you speak with his doctors about this feeling he described? How is he doing now? Would love to hear...

Posted by atti_editor

1 Reply | Share this:swollen face Did you speak with his doctors about this feeling he described? How is he doing now? Would love to hear...

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